From Plan to Practice Implementing NAPA In Your State
The Alzheimer’s Foundation of America (AFA) and the National Alliance for Caregiving hosted a conference and webcast this month on how to implement the caregiver provisions in the National Plan to Address Alzheimer’s Disease at the state and local level.
From Plan to Practice: Implementing NAPA in Your State featured federal and state policy makers who have developed comprehensive plans to provide supports and services to people with Alzheimer’s disease and their family caregivers. Federal and state experts presented best practices and provided tools and strategies on how best to implement these action steps in your localities.
- View the Replay (Will open new page, click “Yes” to download Java for replay)
- Meeting Agenda (PDF)
- Speaker Bios (PDF)
- Setting the Stage – The National Plan to Address Alzheimer’s Disease (Don Moulds HHS) (PDF)
- The National Plan to Address Alzheimer’s Disease and Cost Scoring Issues (Judy Xanthopoulos, Quantria) (PDF)
- NAPA – Get Informed and Get Involved – Implementation Opportunities (Judy Tilly, ACL) (PDF)
- UCLA Alzheimer’s and Dementia Care – Comprehensive coordinated, patient centered (David Reuben, UCLA) (PDF)
- Best Practices – Steps for the State to Help with Delivering the Aging Brain Care (ABC) Model (Malaz Boustani, Indiana Univ) (PDF)
- Minnesota’s Alzheimer’s Plan (Donna Walberg, Minnesota Board on Aging) (PDF)
- Indiana Plan for Alzheimer’s Disease and Related Dementias
- Rhode Island State Plan on Alzheimer’s Disease and Related Dementias (Catherine Taylor, RI Dept of Human Services) (PDF)
For questions about this event, please contact the Alliance’s Programs and Operations Associate, Emily Lubin at: firstname.lastname@example.org.
- Supporting Family Caregivers of Veterans: This webinar features information on the Pfizer Patient Assistant Program and the National Veteran Caregiver Training Program, initiatives that the Alliance has partnered with in an ongoing effort to improve patient care. Presenters included Margaret Kabat, Deputy Director, Caregiver Services, Department of Veterans Affairs and Jed Johnson, MSW, MBA, the Director of the National Veteran Caregiver Training Program with Easter Seals. Click here to access the webinar replay.
- Commission on Long-Term Care Webinar: NAC’s President and CEO, Gail Hunt, presented on the congressional Commission on Long-Term Care and its findings and recommendations. George Vradenburg, one of the commissioners, also spoke about his experience in dealing with the many divergent political views of the group and how many of them came to consensus. Click here to access the webinar replay.
NAC Awards 2013 Innovation in Family Caregiving Grants in Louisville
On July 30, 2013, the National Alliance for Caregiving and MetLife Foundation hosted a reception and luncheon for the ten 2013 Innovations in Caregiving Grantees. The luncheon was part of the Annual Meeting of the National Association of Area Agencies on Aging, which was held in Louisville, KY. Approximately 85 aging colleagues attended the luncheon to see each awardee briefly present an overview of their project and accept their awards plaque. Each winner had previously received a check of $10,000 to assist them in replicating the “best practice” caregiving program. The awardees presented more information describing how the replicated program would compliment other caregiving services at their agency at a workshop conference held after the luncheon. To learn more about the award recipients and see the list of winners, please click here.
INTERNATIONAL ALLIANCE OF CARER ORGANIZATIONS (IACO) INAUGURAL MEETING
The inaugural meeting of the International Alliance of Carer Organizations took place on May 22 in Dublin, Ireland. The meeting was a great success with presentations on family carers in attendee countries as well as discussion on future projects for IACO. Member countries from the United States, Canada, Sweden, the United Kingdom, Ireland, Australia, and New Zealand took part in the discussion. There were also interesting speakers, including a keynote from Saul Becker, the Head of School and Professor of Social Policy and Social Work at the University of Nottingham. His presentation on the International Perspectives on Younger Carers provided great insight to the challenges of young caregivers. The meeting produced many next steps that we look forward to pursing in the coming months.
Planting The Seed
Ever wanted to start your own family caregiver coalition? Ever wanted to improve the one you have? Planting the Seed: Establishing and Growing Your Family Caregiving Coalition is now available to help answer your questions.
Produced by NAC, the purpose of this guide is to offer guidance both to individuals and organizations who want to establish a caregiving coalition in their community and to existing coalitions looking for tools to help them maintain, grow and strengthen their coalition.
Volume 1 is now available and covers what you need to know to start a coalition, from the planning steps, to creating a vision statement, mission statement, goals and objectives, and how to operationalize your coalition. Volume 2 will be available this summer and focuses on growing and maintaining your coalition, with topics including: strategic planning, decision making, projects and activities such as advocacy, education/training, research, public awareness, information and referral, and evaluation and sustainability.
To learn more about family caregiving coalitions and connecting with those in your area, email us at email@example.com.
Tell Washington…We Must Stop Alzheimer’s!
In honor of National Family Caregivers Month and National Alzheimer’s Disease (AD) Awareness Month we are asking everyone, especially caregivers to send a strong message to Capitol Hill to not let up on fighting AD. We know how challenging caregiving can be…caring for someone with AD can be even more so. Alzheimer’s is a cruel, heartbreaking disease that affects one in three American families. Across the country, more than five million people ages 65 and older currently are living with AD. Over 15 million more Americans – family members, friends, neighbors and volunteers – provide unpaid care for someone with AD. Unless we find new treatments or find a cure, by 2050 over 16 million Americans, plus their families will be facing the devastation of Alzheimer’s.
It is vitally important that Congress fulfill its commitment to fight this disease by carrying through on the National Plan to Address Alzheimer’s Disease, which was adopted this summer. This is why The National Alliance for Caregiving is asking one minute of your time – one minute to read and sign a petition, already signed by thousands of other Americans to Tell Washington, We Must Stop Alzheimer’s! Please follow this link (click here), read and sign the petition. Then we ask that you pass this message along to everyone you can in your network – colleagues, coalition members, caregivers, friends and others. Please post it on your social media as well.
Together we can truly make a difference and ultimately stop this disease. Thank you!