Caregiving in the U.S. 2015

Caregiving in the U.S. 2015, conducted by the National Alliance for Caregiving and AARP, provides a national snapshot of family caregiving in the United States. The typical higher-hour caregiver (who provides unpaid care for at least 21 hours a week) has been caregiving for an average of 5-1/2 years and expects to continue care for another 5 years. Nearly half of these higher-hour caregivers report high emotional stress (46 percent).

 

With an average household income of $45,700, caregivers report not only emotional strain, but financial strain. Higher-hour caregivers report difficulty in finding affordable caregiving services, such as delivered meals, transportation, or in-home health services, in the community for them and their loved ones. Caregivers who live more than an hour away from their care recipient also report higher levels of financial strain (21 percent), perhaps because 4 out of 10 long-distance caregivers report the use of paid help (41 percent).

 

 

Final Report and Related Materials

 

Caregiving in the US 2015   Press Release – “New study identifies challenges for family caregivers, caregiving solutions needed”
The profile of the family caregiver in America is changing as the population ages, according to a new research study from the National Alliance for Caregiving and AARP. While the “typical” family caregiver is a 49-year-old woman who takes care of a relative, caregivers on the whole are becoming as diverse as the American population.
Caregiving in the US 2015_Key Findings  

Caregiving in the U.S. 2015 – Executive Summary
An estimated 43.5 million adults in the United States have provided unpaid care to an adult or a child in the prior 12 months. About 18.2% of the respondents surveyed reported being caregivers. The estimated prevalence of caring for an adult is 16.6%, or 39.8 million Americans. Approximately 34.2 million Americans have provided unpaid care to an adult age 50 or older in the prior 12 months. 

Caregiving in the US 2015_Care Recipients  

Caregiving in the U.S. 2015 – Final Report
The full Caregiving in the U.S. 2015 Final Report, including new insights into higher-hour caregivers (at least 21 hours of care a week), caregivers ages 75 and older, multicultural caregivers (including African American/black, Hispanic/Latino, and Asian American/Pacific Islander populations), and the challenges facing caregivers in the workplace.

Caregiving in the US 2015_Care Recipients 18 - 49  

Special Report: Caregivers of Persons Age 18 – 49
This is the first of two companion reports to the full report of the study entitled Caregiving in the U.S. 2015. This companion report focuses on 159 unpaid family caregivers who provide care to an adult age 18 to 49 – we call them “caregivers of younger adults” – and includes a comparison to 1,087 caregivers of older adults, when significantly different.

Caregiving in the US 2015_Care Recipients 50+  

Special Report: Caregivers of Persons Age 50 and Older
This is the second of two companion reports to the full report of the study entitled Caregiving in the U.S. 2015. This companion report focuses on 1,087 unpaid family caregivers who provide care to an adult age 50 and older.

Caregiving in the US 2015_Questionnaire  

Caregiving in the US 2015 – Appendix A Questionnaires
This is the survey questionnaire that was used in the Caregiving in the U.S. 2015 research study. 

Caregiving in the US 2015_Methodology  

Caregiving in the US 2015 – Appendix B Detailed Methodology
This Appendix describes, in more detail than the Final Report, the research and sample design for Caregiving in the U.S. 2015. Also included is a discussion of prevalence estimation, weighting, and response rate.

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Caregiving in the US 2015 – Public Use Data File (SPSS)

Please note that any work done with this data should be jointly attributed to the National Alliance for Caregiving and AARP. This data file includes data on caregivers age 75 and older, and an oversample of African American/Black American, Hispanic/Latino, and Asian American Pacific Islander caregivers. See the Overview of Methodology for more details on data collection.

Caregiving in the US 2015_Slides  

Presentation slides from the June 2015 Capitol Hill briefing of Caregiving in the U.S. 2015. The Hill briefing featured remarks from Congresswomen Michele Lujan Grisham (D-NM) and Diane Black (R-TN), family caregiver Lea Rowe, and national experts Gail Gibson Hunt and Dr. Susan Reinhard. More than 100 thought-leaders and congressional staff attended. 

 

Caregiving in the US 2015_Fact Sheets   Caregiver Profile Fact Sheets: 

Caregiver Profile: The “Typical” Caregiver

Caregiver Profile: The Higher-Hour Caregiver

Caregiver Profile: Caregivers Age 75+ 

Caregiver Profile: Millennials (Age 18 – 34)

Caregiver Profile: African American/Black Caregivers

Caregiver Profile: Hispanic/Latino Caregivers

Caregiver Profile: Asian American Pacific Islander Caregivers

Caregiver Profile: Men as Caregivers

 


 

Key Media Coverage

 

More Caregivers Are No Spring Chickens Themselves
New York Times | July 3, 2015
“Schwartz is 78. While she thinks her husband does better at home – ‘He’s getting 24-hour attention, and you don’t get that in a nursing home,’ she said – friends point out that the arrangement is much harder on her. She worries, too, about costs climbing as Mr. Schwartz’s health declines and his needs increase. For now, though, she manages, part of an apparently growing phenomenon: the old taking care of the old.”
 
A New Snapshot of America’s 44 Million Family Caregivers: Who They Are and What They Do
Forbes | June 4, 2015
“A landmark new study paints a dramatic picture of family caregivers: Nearly 44 million adults in the US are providing personal assistance for family members with disabilities or other care needs. That’s more than one out of every six adults. More than 34 million care for frail elders and nearly 4 million help children with disabilities. About 6.5 million care for both.”
 
Who America’s Caregivers Are & Why It Matters
PBS NextAvenue | June 4, 2015
“Do you fit this portrait? You are a 49-year-old woman caring for a 69-year-old female relative, most likely your mother. If you have an outside job, you do that work nearly 35 hours a week. You’ve been caring for mom for four years, about 24 hours each week. You are more likely than not to be helping her with medical or nursing-type tasks, including complex things like shots, tube feedings, catheters and colostomy needs.”
 
Millennials Make Up Substantial Share of America’s Caregivers
PBS News Hour | June 4, 2015
“Nearly 40 million Americans offer unpaid care to an adult friend or relative, and of those caregivers, Millennials make up a major part of this group, according to a report issued today by AARP and the National Alliance for Caregiving.”


Research Sponsors

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