Join the National Alliance for Caregiving for the 12th Annual National Conference of Caregiving Advocates. Our one-day meeting will be hosted in partnership with the American Society on Aging at the Aging in America 2017 Conference, on Monday, March 26, 2018. To register for the 12th Annual National Conference of Caregiver Advocates, you must first register for the American Society on Aging Conference by going to http://www.asaging.org/registration-information.
Interested in partnering on the conference? Contact the Alliance at email@example.com for more information.
Engaging Caregivers Across the Lifespan
Family Caregivers may be the largest non-elder stakeholder in the aging network, but they are also much more. At a population of nearly 44 million, caregivers are generally one of the largest constituent groups in the United States. If mobilized and prepped for advocacy, caregivers would have an incredibly dominant voice on the national stage when it comes to setting policies and practices that benefit not only themselves, but also those they care for every day.
The National Alliance for Caregiving is leading the way to engage and leverage this powerful voice for policy change by hosting the 12th Annual National Conference of Caregiver Advocates-Engaging Caregivers Across the Lifespan. This all-day event is held in conjunction with the American Society on Aging Conference—Aging in America—in San Francisco, California on Monday, March 26, 2018.
Presentation Topics Include:
- Building Capacity to Support Caregivers Across the Lifespan
- Caregiver-Friendly Communities
- The 21st Century Workforce in a 21st Century Workplace
- Mapping the Caregiver Journey
- Workshop: Next Steps for Caregiver Advocacy
- Sandy Markwood, MS, CEO, National Association of Area Agencies on Aging (n4a)
- Donna Wagner, PhD, Dean, College of Health and Social Service, New Mexico State University
- Stephanie Firestone, MUP, Senior Strategic Policy Advisor, AARP Office of International Affairs
- Dawn Simonson, MPA, Executive Director, Metropolitan Area Agency on Aging
- Donna Benton, PhD, Associate Research Professor of Gerontology, USC Family Caregiver Resource Center
- Vicki Shabo, MA, JD, Vice President for Workplace Policies and Strategies, National Partnership for Women & Families
- Sharon Terman, JD, Director, Work and Family Program, Legal Aid at Work
- Liddy Manson, MBA, Director, Aging Well Hub Georgetown McDonogh School of Business
- Laurel Rodewald, Program Director, The Elizabeth Dole Foundation
- Sita Diehl, MA, MSSW, Principal, Sita Diehl Consulting, LLC
- Gail Hunt, Founder, National Alliance for Caregiving
- C. Grace Whiting, JD, President and CEO, National Alliance for Caregiving
- Michael Wittke, MPA, Director of Advocacy, National Alliance for Caregiving
2018 Scholarship Recipients for the NAC Annual Meeting Announced:
- Vicki Clear, Montana Lifespan Respite Coalition, Miles City, MT
- Christine Damon, Lake County CaregiverNet, Wadsworth, IL
- Lylie Fisher, Montgomery County MD Caregiver Coalition, Rockville, MD
- Emily Kearns, Massachsetts Lifespan Respite Coalition, Andover, MA
- Doris Green, New York State Caregiving and Respite Coalition, Rochester, NY
- Jenny West, Metropolitan Caregiver Service Collaborative, Stillwater, MN
- Jill Liken, Northern Colorado Respite Coalition, Fort Collins, CO
- Gloria Miranda, Alamo Caregiver Support Coalition/Hispanic Outreach Coalition, San Antonio, TX
- Kathy Dial, Virginia Caregivers Coalition, Virginia Beach, VA
- Helen Flores, Bexar Area Agency on Aging Caregiver Coalition, San Antonio, TX
Previous Coalition Conferences
The 2017 conference examined the future public health implications of family caregiving. We knew caregiver stress could lead to serious health problems—as our population rapidly ages, and the number of available family caregivers in younger generations diminishes—the 11th Annual National Conference of Caregiver Advocates explored the question Is Family Caregiving the Next Public Health Crisis?
Presentations featured informed insights from public health experts, diverse perspectives from caregiving innovators, and actionable solutions from engaged advocates.
The event built on work uncovered in the 2016 meeting – The Next 20 Years in Caregiving – which was held in conjunction with the American Society on Aging Meeting on March 21, 2016, in Washington, D.C.
We know stress can lead to serious health problems. As we examine the relationship between family caregiving and public health—namely caregiver stress, an aging population, and a shrinking family caregiver workforce—we asked “Is Family Caregiving the Next Public Health Crisis?” Presentations for this all-day event featured informed and diverse insights from public health experts, caregiving innovators, and engaged advocates.
- NAC Program Agenda Is Family Caregiving the Next Public Health Crisis?
- NAC Program Speaker Bios
- Scholarship Recipients
- Updates from the National Alliance for Caregiving
- Legislative Updates
- Is Family Caregiving the Next Public Health Crisis? – Featured Speaker and Fireside Chat
- Policy Perspectives on Public Health and Family Caregiving
- Presentations on Creative Caregiving, Senses of Caregiving, and Caregiving Research
- Social and Cultural Perspectives on Public Health and Family Caregiving
- Inside-the-Beltway Updates on Family Caregiving Legislation & Advocacy
- Families Caring for An Aging America
- Caregiving is a Public Health Issue
- Why Caregiving is a Growing Public Health Concern from a Physician’s Perspective
- Nutrition and Caregiving: A Public Health Issue
- Skin Health Matters (for Caregivers!)
- Bridging the Gap: Public Health & Faith
- Caregiving and Hispanic Health
- Gender Differences in Family Caregiving
- Policy Issues & Solutions: Caregivers of Adults with Mental Illness
- Addressing the Burdens Associated with Serious Illness: Policy Solutions for Patients and Caregivers
- Different Journeys, One Unhealthy Road: Health Implications for Racially/Ethnically Diverse Family Caregivers of Persons with IDD or Alzheimer’s Disease/Dementia
In January, the National Alliance for Caregiving celebrated our 20th birthday – two decades of working to improve the lives of America’s family caregivers through research, innovation, and advocacy. As we reflected on how far our society has come in supporting family caregivers, we looked ahead to the future – what’s in store for caregiving 20 years from now?
Similar to a patient advocacy meeting, The Next 20 Years in Caregiving conference was hosted at the American Society on Aging Meeting on March 21, 201 in Washington, D.C. The one-day event featured national experts on caregiving, health care reform, health technologies, and aging and disability issues. Over 175 caregiving advocates attended including representatives from the National Network of Caregiving Coalitions, a virtual network of 80+ state and local caregiving coalitions across the U.S.
The 2015 meeting, From Caring to Caregiver Advocate: The 9th Annual Caregiving Coalition Conference, featured over 100 caregiving advocates and coalition representatives from across the United States and focused on the transition of family caregivers to caregiving advocates. Attendees had several opportunities to connect with other advocates, including a “Table Topics” discussion lunch and Q&A with national experts. Panels included research and analysis on caring for underserved populations, legislative and advocacy work, and how new technologies can support caregivers. We were honored to have Pennsylvania’s Former Secretary of Aging, Brian Duke, as our keynote speaker.
- Meeting Agenda – March 24, 2015 (PDF)
- Conference Speakers (PDF)
- Presentation Slides
- Speaker Resources & Handouts
- 2015_Legislative Overview
- NAC_Get Involved Flyer
- NAC_Caregiving Champions Flyer
- Caregiving Champions Program
- Easter Seals Many Faces of Caregiving Study (Made Possible by Mass Mutual)
- Family Support Dialogue Project (UIC)
- Help for Cancer Caregivers (Caregiver Action Network)
- Caring for Rare Disease Caregivers (Caregiver Action Network)
- UnitedHealthcare – Caregiver Support & Resources
- Align My Refills – Benefits for Patients and Caregivers
- Right at Home – The Right Care Adult Caregiving Guide
- Other NAC Presentations
The annual meeting brought together caregiving coalitions and advocates from across the United States to discuss the latest in caregiving legislation, advocacy, and innovation. Many thanks to our generous sponsors: The Archstone Foundation, Pfizer, and Genentech.
- NAC Coalitions Conference 2014_Agenda
- Meeting Packet and Agenda
- Legislative Update – March 2014
- FY2015 President’s Budget Brief
- Media Advisory
- Final Presentation Slides
- NAC Presentation – A New Guide to Growing and Sustaining Your Coalition
Presentation Slides by Speaker/Panel:
Seventh Annual National Conference for Caregiving Coalitions, 2013
- Download presentations from this conference:
- Stien Vandierendonck: Family Caregiving Coalitions
- Laurie Orlov: Research Perspective: Boomer / Senior Technology Preferences and Users
- Jim Durkan & Mike Bruni: Leadership Boards…Do You Have a LOVE Connection
- Kimaya Dixit: Why “Care” about Social Media?
- Extra Materials : Facebook & Twitter 101
- Doug Busch: Multiplying the Care Team with Technology
- John Schall: Advocating for Caregiving From the Roots Up
- Amy Friedrich-Karnik: You as a Caregiver Advocate: How Coalitions Can Impact Federal and State Legislation Today
Sixth Annual National Conference for Caregiving Coalitions, 2012
- Download presentations from this conference:
- Brian Duke: The Importance of Networking when Resources are Tight
- Claire Culbertson: Coalition Success in Wisconsin: The Wisconsin Caregiver Coalition Project
- Denise Graab: Building Coalitions through Social Media
- Majd Alwan: Technology to support the Caregiving Network
- Amy Gotwals: What’s Happening in Washington: Legislative Update
- Allison Nickerson: AARP Public Policy Institute – Family Caregiver Coalitions and the Campaign for Action
Fifth Annual National Conference for Caregiving Coalitions, 2011
The Alliance hosted its Fifth National Conference for Caregiving Coalitions on April 27 at the 2011 American Society on Aging Conference in San Francisco. Over 120 people attended the event this year, and we would like to thank our sponsors for making this conference possible: Pfizer and Sanofi Aventis.
This half-day event discussed the recently released “e-Connected Family Caregiver: Bringing Caregiving into the 21st Century.”
Attendees were able to hear from six experts on topics ranging from the results of the Alliance’s e-Connected Family Caregiver study, federal policy and the Year of the Caregiver to best practices in advocacy, raising awareness, direct service and recognizing family caregivers.
Download presentations from this conference:
- Tech & Caregiving – Gail Gibson Hunt (PPT)
- The Year of the Caregiver – Greg Link (PPT)
- The Year of the Caregiver – Greg Link (PDF Part 1)
- The Year of the Caregiver – Greg Link (PDF Part 2)
- Coalition Best Practices: Advocacy: Eldon Wegner (PPT)
- Coalition Best Practices: Awareness: Brian Duke (PPT)
- Coalition Best Practices: Direct Service: Carol Degraw (PPT)
- Coalition Best Practices: Recognition: Sonnie Yudell (PPT)
Fourth National Conference for Caregiving Coalitions, 2010
The Alliance hosted its Fourth National Conference for Caregiving Coalitions on March 15, 2010 at the Annual Conference of the American Society on Aging (ASA) and the National Council on Aging (NCOA). Over 150 people attended this event again this year and we would like to thank our sponsors for making this conference possible: Evercare, the Langeloth Foundation and Pfizer.
This half-day event discussed the recently released “Survey of the Economic Downturn and its Impact on Family Caregiving” and “Caregiving in the U.S. 2009”.
U.S. Congresswoman Jan Schakowsky, a leading voice in health care reform and sponsor of the Retooling the Healthcare Workforce for an Aging America Act of 2009 also attended this event to discuss the importance of sustaining advocacy and coalition work during these tough economic times.
Download presentations from this conference:
- 2009 Caregiving in the U.S. – Gail Hunt (PPT)
- Economic Downturn and its Impact on Family Caregiving – Sherri Snelling (PPT)
- Economy and Caregiver Coalitions – Brian Duke (PPT)
- Advocacy in Action – David Besst (PPT)
Third National Conference for Caregiving Coalitions, 2009
The Alliance hosted the Third National Conference for Caregiving Coalitions on March 18, 2009 at the Annual Conference of the American Society of Aging (ASA) and the National Council on Aging (NCOA). Over 300 participants registered for the event. We would like to thank the Langeloth Foundation, Evercare, Wyeth/Elan Alliance and Intel Corporation for sponsoring the conference.
This half-day event provided an opportunity for participants to learn from coalition leaders about evaluation tools, sustainability, innovative caregiving programs, fundraising, and outreach to caregivers and other organizations. Lynn Friss Feinberg of the Family Caregiver Alliance delivered the keynote on a national perspective on family caregiving in an aging America. Brian Duke from the Bucks County Area Agency on Aging spoke to the Caregiving Coalitions on “What Is Your Ask?” in which he instructed them to always be ready with a unified voice on what it is they want when addressing their Congress people and Senators.
Download the presentations from the conference:
- Supporting Sustainable Caregiving Coalitions – Donna Heppermann (PPT)
- Innovation and Sustainability – Sonnie Yudell (PPT)
- The Virginia Caregiver Coalition – Ellen Nau (PPT)
- The Behavioral Risk Factors Surveillance System – Katie Maslow (PPT)
- What is Your ASK? – Brian Duke (PPT)
- Family Caregiving in an Aging America: A National Perspective – Lynn Feinberg (PPT)
Second National Conference for Caregiving Coalitions, 2008
The Second National Conference for Caregiving Coalitions was held on March 26, 2008, as a pre-conference event to the joint American Society on Aging/National Council on Aging annual meeting in Washington D.C. Nearly 100 members of caregiving coalitions from twenty-four different states participated in the event, where they learned from seasoned coalition leaders about sustainability, fundraising and evaluation.
Download presentations from the conference:
- Building Public and Private Partnerships – Carol DeGraw (PPT)
- Advocacy Cycle in Action – Brian Duke (PPT)
- Reaching Out to Minority Caregivers – Monica James (PPT)
- The Role of Caregivers in Advocacy – Steve McConnell (PPT)
- The So What Question – Mary Brintnall Peterson (PPT)
First National Conference for Caregiving Coalitions, 2007
The First National Conference for Caregiving Coalitions was held on March 5, 2007 as a pre-conference event to the joint American Society on Aging/National Council on Aging annual meeting in Chicago. Over 100 people attended the conference; 87 of who were representing coalitions. Attendees participated in a range of sessions including Creating a Legacy, Advocacy Campaigns and Activities, Working with Legislators, and Fundraising.
Download presentations from the conference:
- Building Your Coalition’s Brand, Developing and Promoting Caregiving Awareness and Working with the Media – Robert Deigh (PDF)
- Leadership Development and Membership – Brian Duke (PDF)
- Strategies for New Coalitions – Brian Duke (PDF)