Ever wanted to start your own family caregiver coalition? Ever wanted to improve the one you have? Our coalition guidebooks can help you with you establish, build, and sustain your family caregiving coalition.
Written by the National Alliance for Caregiving with input from caregiving coalitions across the U.S., these guidebooks cover the basics of setting up a non-profit, communications, funding, strategic planning, advocacy, and more. They are intended to be helpful both for the beginning advocate and for existing coalitions interested in growth and sustainability.
Download the Guidebooks!
By way of background, these guides were developed from the 12 Keys guidebook, a collaborative effort under the direction of Helen Eltzeroth, Project Manager. To view the original document, click here.
To learn more about family caregiving coalitions and connecting with those in your area, email us at firstname.lastname@example.org.
Coalition Advocacy Guides
Each of the caregiving coalitions participating in the project conducted Caregiver Awareness Day activities in their communities. Materials developed by the project for awareness day activities are provided below and may be used by all coalitions planning awareness day activities.
Press Release Templates
- Template A: For Caregiver Awareness Day Activities in November (PDF)
- Template B: For Caregiver Awareness Day Activities Before November (PDF)
Four webcasts were developed for the coalitions participating in the Building Sustainable Caregiving Coalitions project. Following each webcast, the PowerPoint presentations and materials developed for the webcast will be available on our website. The website schedule and topics for each webcast are shown below.
Which Topic for Advocacy – June 27, 2007
Making Your Caregiver Awareness Day a Success – July 26, 2007
Communication Strategies – August 20, 2007
Motivation and Momentum – September 21, 2007
Download the Caregiver Coalition Advocacy Guide (PDF), which discusses the role of caregiver coalitions in advocacy, define ways to plan an effective advocacy campaign, and provide practical ways for coalitions to communicate and advocate on behalf of caregivers.
The Advocacy Task Force has worked to develop an Advocacy Toolkit which you can download here: Advocacy Toolkit for Caregiving Coalitions (PPT). Additionally, members of the Task Force have provided these sample documents to aid your advocacy work:
- Legislator Visits (MS Word)
- California Caregiver Resource Centers Fact Sheet (MS Word)
- Basic Advocacy Hints (MS Word)
- Aging Issues 2010 – A Guide for Hawaii’s Legislators, Organizations & Citizens (PDF)
- Aging & Disability Issues 2011 – A Guide for Hawaii’s Legislators, Organizations & Citizens (PDF)
- Caregivers Coalition of Morris County, a United Way of Morris County, NJ Initiative: Sustaining our Work (PPT)
- 2010 Caregiver Friendly® Award Winning Pathways for Caregivers Guide
- New York City Family Caregiver Coalition – Complete Journal 2009 (PDF)
- New York City Family Caregiver Coalition – Complete Journal 2010 (PDF)
- Taking Care: A Resource Guide for Caregivers (PDF)
- Grand Parents Caring For Grand Children: A Resource Guide (PDF)
Hawaii Family Caregiver Coalition
The Hawaii Family Caregiver Coalition developed “Aging & Disability Issues 2013: a guide for Hawaii’s Legislators, Organizations & Citizens”. It’s a is a report that offer an overview of legislative issues dealing with aging, disability, caregiving, and long term care. Its purpose is to call attention to the priority issues which deserve the serious attention of our lawmakers, advocates, and the public. Click here to read the booklet.
Caregiver Coalition of Bergen County, New Jersey
The Caregiver Coalition of Bergen County created a brochure to promote the coalition. Click here to see the brochure.
United Way Caregivers Coalition, New Jersey
Some useful resources to adapt from the United Way Caregivers Coalition New Jersey
Pathways Sponsor Info Sheet
Event Sponsorship Form
We’re honored to partner with the National Coalition on Aging on a series of resources for family caregivers of older adults. Many caregivers may not realize that 1 in 4 adults over the age of 65 falls every year, injuring themselves and often exacerbating other conditions of aging. Falls are the leading cause of fatal and non-fatal injuries for older Americans; they are costly—in dollars and in quality of life. To learn more about our 2017 webinar series, please click here.
Financial Planning for Caregivers
The National Alliance for Caregiving joined WISER and Genworth for a discussion of family caregiving and retirement. Beth Ludden, Vice President of Long-Term Care Products for Genworth presented on new research from their “Beyond Dollars” report. Lara Hinz, the Director of Programs for WISER gave an overview of the “Financial Planning for Caregivers” workbook.
- Presentation Slides: Financial Planning for Caregivers (PDF)
- Genworth “Beyond Dollars” – Research Summary (PDF)
- Genworth Conversation Kit – “Let’s Talk” (PDF)
- Workbook: Financial Steps for Caregivers: What You Need to Know About Protection Your Money and Retirement (PDF)
- Consumer Financial Protection Bureau: Managing Someone Else’s Money (Web Article)
2015 Family Caregiving Tele-Town Hall
We were honored to host the Family Caregiving Tele-Town Hall featuring the 2015 White House Conference on Aging Executive Director Nora Super, on Thursday, February 26th. This event gave family caregivers and caregiving advocates a chance to share their thoughts on the future of caregiving in America. Guest speakers included Ms. Super, Alliance President/CEO Gail Gibson Hunt, and Caregiver Action Network CEO John Schall. The discussion centered around topics for the White House Conference on Aging:
- How does caregiving support healthy aging for America’s seniors? How can we support the healthy aging of caregivers themselves?
- Our current long-term care system relies heavily on the family caregiver to support the health and wellness of their loved one. How can the aging network better support caregivers as America ages?
- Many family caregivers take time out of their own careers to care for their loved ones. How can we help caregivers plan for a secure retirement?
- How can we equip friends and family to recognize signs of elder abuse (including both financial and physical abuse) and to take action to stop it?
Following this conference, the Alliance and CAN collected input from family caregivers and shared formal recommendations with the White House staff. To read the joint letter, please click here.
2014 Coalition Webinars
- Financial Planning for Caregivers, December 2014 Lara Hinz, M.S.W., Director of Programs at Women’s Institute for a Secure Retirement (WISER) provided an overview of the Financial Planning for Caregivers Guidebook and guidance on how to train family caregivers on financial planning. Learn about the key issues facing caregivers as they prepare for retirement. Download the Presentation Slides here.
- Implementing the National Alzheimer’s Plan in Your State, September 2014 The National Alliance for Caregiving, the Alzheimer’s Foundation of America, and the National Association of Area Agencies on Aging joined together for a discussion of the new white paper, “From Plan to Practice: Implementing the National Alzheimer’s Plan in Your State.” National experts and case study author Donna Walberg of ACT on Alzheimer’s (Minnesota) discussed why states should have a plan, how to implement and evaluate plans, and best practices. Download the Presentation Slides here.
- How to Engage Family Caregivers in Your Coalition, June 2014 If you’ve been wondering how to get family caregivers involved in your work – now is the time to find out! With rural and urban perspectives, experts in coalition building offered their suggestions for getting family caregivers engaged. Featuring Gregory L. Johnson, MDiv, SMM of the NYC Family Caregiver Coalition and Kathleen R. Manny and Jane Jensen of the Family Caregivers Coalition in Sheboygan County, Wisconsin.
- Better Work, Better Care: How Employers Can Support Family Caregiving, February 2014 This webinar describes how to build caregiver-friendly workplace policies in your state. Bringing together caregiving experts and employers from the national ReACT Coalition, the webinar discussed how caregiving advocates can work with employers to raise awareness of the needs facing working family caregivers. Download the Presentation Slides here.