National Network of Caregiving Coalitions

National Network of Caregiving Coalitions
The National Network of Caregiving Coalitions is a virtual network of 80+ state and local caregiving coalitions across the United States. In supporting this network, the Alliance provides technical assistance, an annual conference, quarterly webinars, and guidebooks to assist coalitions in their work with family caregivers. Join the listserve for this network by clicking here.

Advocacy Task Force

Our yearly programming is guided by the Advocacy Task Force, a working group of coalition representatives that meets monthly to provide advice and counsel on current project and engages in two key areas: (1) Sharing of Best Practices and Strategies; and (2) Setting Priorities for National Work. These leaders represent the diverse interests of family caregivers across the United States and are leading the way in caregiver advocacy, education, and empowerment.
Task Force Leaders 

AR – Sheila Palmer Harrod, MPA
Program Coordinator
UAMS Schmieding Home Caregiver Training Program 


AZ – Elizabeth Harris, MSW
Interim Treasurer, Arizona Caregiver Coalition
Respite Project Coordinator,


CA – Dr. Donna Benton, Kylie Meyer, MSc
Leonard Davis School of Gerontology, University of Southern California
California Task Force on Family Caregiving


CA – Veva Arroyo, BDS, Sharp HealthCare
Past Chair (2015-2017) Current Steering Chair (2017-2018)
San Diego Caregiver Coalition


FL – Toula Wootan, MHA
Community Development Officer,
Community Hospice of Northeast Florida
Caregiver Coalition of Northeast Florida 


FL – Chris MacLellan
The Purple Jacket 


HI – Eldon Wegner, PhD
Professor Emeritus (Sociology), U. Hawai’i at Manoa
Hawaii Family Caregiver Coalition


IL – Chris Damon
Executive Director
CareSmart Illinois


ME – Dr. Ken Elliott
University of Maine 


MI – Anne Ellermets
Director of Contract Services & Program Development
Caregiver Resource Network


MN – Beth Wiggins
Director of Caregiving and Aging Services
Metropolitan Caregiver Service Collaborative


MS – Spencer Blalock
Mississippi Family Caregiver Coalition


MT – Kerrie Reidelbach
Program Manager
Montana Lifespan Respite Coalition


NM – Adrienne Smith, MPA 
Founder & Executive Director
New Mexico Direct Caregivers Coalition 


NJ – Carol DeGraw, MSW, LCSW
Health Impact Area Director
United Way Caregivers Coalition


NJ – Eric Joice
Executive Director, The Family Resource Network
Caregivers of New Jersey


NV – Debbie Carroll
The Senior Sage 


NY – Andrea Cianfrani, Esq.
Deputy Director of Public Policy, LiveOn New York
NYC Family Caregiving Coalition (LiveOn New York)


OR – Jon Bartholomew
Director – Government Relations
AARP Oregon State Office


TN – Janice Williams, RN
Caregivers Respite


TX – Faith Unger
Caregiver U Program Director
Caregiver U (Age of Central Texas)


UT – Geri Lehnardt
Utah Caregiver Coalition


VA – Ashley Kenneth
Geriatric Care Manager, VCU Health System
Virginia Caregiver Coalition 


WA – Hilary Hauptman
Kinship Family Caregiver Program Manager
Washington State Department of Social and Health Services  


WA – Linda Porter
Program Coordinator
Lifespan Respite Washington 


WI – Janet Zander, MPA
Advocacy & Public Policy Coordinator
Greater Wisconsin Area Agency on Aging Resources 


For more information about this group, contact the Alliance’s Director of Advocacy Mike Wittke at

Coalition Resources

Looking for resources on establishing or growing your coalitions? Want to download the Advocacy Tool Kit? Visit our Coalition Resources page here.