Ever wanted to start your own family caregiver coalition? Ever wanted to improve the one you have? Our coalition guidebooks can help you with you establish, build, and sustain your family caregiving coalition. Written with input from caregiving coalitions across the U.S., these guidebooks cover the basics of setting up a non-profit, communications, funding, strategic planning, advocacy, and more. They are intended to be helpful both for the beginning advocate and for existing coalitions interested in growth and sustainability.
By way of background, these guides were developed from the 12 Keys guidebook, a collaborative effort under the direction of Helen Eltzeroth, Project Manager.
Paid Family & Medical Leave
The Family and Medical Leave Act (FMLA) entitles eligible employees up to 12 weeks of unpaid leave each year to recover from their own serious health conditions or to care for a newborn, a newly adopted child, or a seriously ill family member. However, up to 40 percent of people in the workforce are not eligible for leave under FMLA—and many cannot afford to take unpaid leave.
For good reason, Members of Congress from all parties are now turning their attention to paid leave. As policymakers consider ways to support working families, any policy involving paid leave should include family caregivers. This advocacy fact sheet, “Family Caregivers Need to Be Included in the National Conversation on Paid Family Leave,” outlines: 1) the ways in which caregivers serve as the backbone of our long-term care system; 2) how a lack of paid leave can lead to financial strain and negative workplace impacts for caregivers, and; 3) why paid leave programs result in better health outcomes and lower overall health care system costs.
We encourage coalitions to disseminate this fact sheet to their networks and use it in their advocacy efforts, helping to ensure that caregivers are included in the national conversation on paid leave.
Alzheimer’s State Plans
From Plan to Practice: Implementing the National Alzheimer’s Plan in Your State (2014)
The National Alliance for Caregiving and the Alzheimer’s Foundation of America were pleased to offer a half-day conference in December 2013, titled From Plan to Practice: Implementing NAPA in Your State. Over 250 webinar participants from more than 39 states and the District of Columbia heard from federal and state policymakers involved in developing comprehensive plans to provide supports and services to people with Alzheimer’s disease and their family caregivers. Federal and state experts also provided best caregiver practices, tools, and strategies on how best to implement these action steps in states and