Respite is planned or emergency care provided to a child or adult with special needs in order to provide temporary relief to family caregivers who are caring for that child or adult.

https://archrespite.org/

Research on Family Caregiving Support in the United States: A Strategic Research Plan is the product of an iterative, multi-layered process involving multiple stakeholders including family caregivers, persons with disabilities, health and social welfare professionals, policymakers, and researchers. Divided into four parts, this document outlines the next steps in researching family support by reviewing the current state of the field and identifying future directions.

https://fsrtc.ahslabs.uic.edu/wp-content/uploads/sites/9/2018/11/FSRTC.StrategicReserachPlan.FINAL_.13.pdf