The National Alliance for Caregiving

Strengthening Complex Care Through Family Caregiver Integration
2026-03-24 13:00 - 14:00 (America/New_York)
Life-saving treatments—such as organ transplant and cancer therapy—represent major clinical milestones, but they also mark the beginning of a demanding and long-term caregiving journey. Across many areas of care, family caregivers quickly become essential partners, managing complex medication regimens, coordinating frequent appointments, monitoring symptoms, and supporting daily recovery needs. These responsibilities continue long after discharge, shaping long‑term wellbeing, and influencing health outcomes over time.
Grounded in transplant and oncology, this session will highlight why integrating caregivers and supporting their psychosocial needs is a strategic imperative for health systems—improving patient outcomes and strengthening care delivery. The insights shared apply broadly to many serious and chronic conditions that require high levels of care coordination and caregiver support. Together, we will explore both the clinical importance and the business case for supporting family caregivers as essential members of the care team. Participants will also receive resources for implementing or enhancing caregiver support programs.
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The New Landscape: HR1 and What's at Stake for Family Caregivers
2026-02-26 14:00 - 15:15
With the passage of H.R. 1, the definition of “community engagement” has fundamentally shifted, creating a new and urgent challenge for the millions of family caregivers who rely on Medicaid. While the law technically includes an exemption for caregivers, the burden of proof and the technical hurdles of verification threaten to disenroll those who are already providing essential, unpaid care.
This webinar, hosted by the National Alliance for Caregiving, dives into the technical and political realities of H.R. 1 through a caregiving lens. We will examine the “pain points” of implementation—from the lack of automated verification for caregiving hours, to the administrative strain on state agencies. Featuring experts from across the caregiving ecosystem, we will provide a comprehensive look at how states are navigating these new mandates.
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Caregiver Insights Across the States: Translating Data into Local Action
2026-01-27 13:00 - 14:00
Family caregivers are a critical part of our communities, and understanding their needs is essential for building innovative caregiver programs and services. Newly released state-level caregiver profiles offer a rich view of new caregiving trends, challenges, and opportunities across the U.S.
This webinar will highlight key insights from these state profiles and explore how one Area Agency on Aging (AAA) is using this information to guide program development and service delivery. Participants will also hear from a family caregiver, who will share their personal experience and discuss an innovative social support program that has supported them.
Attendees will leave with actionable ideas for translating data into local strategies, enhancing caregiver support, and aligning their work with broader goals for caregiver-friendly communities.
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Caregiver Nation Summit 2025
2025-11-05 09:00 - 10:00 | https://www.caregiving.org/event/caregiver-nation-summit-2025/
The 2025 Caregiver Nation Summit will draw on groundbreaking insights from the new Caregiving in the US 2025 report. Summit sessions will bring to life key insights, themes, and data trends from Caregiving in the US 2025, and explore such topics as the surge in prevalence of family caregivers, the increasing intensity of caregiving, the financial implications of caregiving, as well as the challenges working family caregivers face. Bringing together leading experts, frontline caregivers, and policymakers, we will turn research into real solutions for our nation’s more than 63+ million family caregivers.
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Your Story Matters: Understanding the Financial Challenges of Cancer Caregiving
2025-09-29 13:00 - 14:30
NAC research shows that family caregiving can have a severe financial impact, with many caregivers stopping saving, taking on debt, or having difficulty paying for basic expenses. This session will explore the financial hardship faced by cancer caregivers, including the out-of-pocket costs and lost wages.
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Your Story Matters: Understanding Gaps in Medical and Nursing Task Training for Cancer Caregivers
2025-09-15 13:00 - 14:30
Family caregivers are essential members of the care team, often managing demanding medical and nursing tasks without formal training. This session will highlight the challenges caregivers face and based on insights from NAC research, pinpoint key areas where training and support are urgently needed. Our goal is to outline a path toward a more supportive care system by better preparing caregivers for the vital roles they play.
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Champions in Care Forum: Driving Caregiver Support in Healthcare Delivery
2025-08-28 13:00 - 14:00 | https://www.caregiving.org/event/champions-in-care-forum-driving-caregiver-support-in-healthcare-delivery/
As healthcare reforms increasingly prioritize value, outcome, and equity, caregivers remain a missing link in both policy and practice. In partnership with the Coalition to Transform Advanced Care (C-TAC), this forum will explore policy opportunities to meaningfully integrate caregivers, and caregiver supports, into health care models. The National Alliance for Caregiving will discuss their work to advance the recognition and support of family caregivers in transplant care to illustrate broader challenges and policy solutions.
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Caregiving in the US 2025: Unlocking Data to Transform Family Caregiving
2025-07-24 14:00 - 15:00 | https://us06web.zoom.us/webinar/register/WN_gzrLM_LQQ3uYOHxpVwXVhA?_gl=1*a1ifhb*_gcl_au*ODE0MzcxMTU1LjE3NTA5Njg5ODEuODc5OTM4ODQ1LjE3NTEwMzA4NDMuMTc1MTAzMDg0Mg..*_ga*NjI4MjE5MDY3LjE3NTA5Njg5OTE.*_ga_L8TBF28DDX*czE3NTE1NzYyNjAkbzEyJGcwJHQxNzUxNTc2NTc2JGo2MCRsMCRoMA..#/registration
Caregiving in the US 2025 will release on July 24. With the new report out, join the National Alliance of Caregiving and AARP for a discussion on the key insights, themes, and data trends emerging from the 2025 report and data.
Caregiving in the US (CGUS) is the nation’s leading ongoing data project on family caregiving that explores the challenges and opportunities associated with caregiving across different populations across the lifespan. Initiated in 1997, CGUS provides policymakers, advocates, researchers, healthcare leaders, and family caregivers a regular pulse check on the economic and healthcare realities of America’s growing community of family caregivers. CGUS is a joint project of NAC and AARP.

Strengthening American Families: Programs & Policies to Support Family Caregivers
2025-06-12 11:00 - 12:15 | Dirksen Senate Office Building, 50 Constitution Ave NE Room SD-G11, Washington, DC, 20002, United States
Family caregivers are the backbone of our nation’s healthcare system and economy. With more than 53 million Americans providing care across every state and community, many important federal programs offer family caregivers – and those they serve — a variety of support in order to keep their loved ones at home, versus having to move them to costly institutional care. With the proper support, many family caregivers can continue to work and care for their family members in a way that offers higher quality, personalized care, dignity and “choice” for the individual. Whether it is a parent caring for a child with complex health care needs, or a sister caring for her brother with intellectual disabilities, or a son caring for his father with Alzheimer’s disease, they all need support.
Join the National Alliance for Caregiving – and partners from across the care continuum – for a briefing on some of the key federal programs that family caregivers rely upon. Join us on June 12th as we discuss how family caregivers receive support from Medicaid, Medicare and the Older Americans Act.
Remarks by:

Jason Resendez, President and CEO, National Alliance for Caregiving
Scott Bane, Senior Program Officer, The John A. Hartford Foundation

Panelists include:

Rachel Richards, Senior Vice President, Careforth
Bryn Ceman, Caregiver Programs Specialist, Greater Wisconsin Area on Aging Resources, Inc.
Rachel Conant, Executive Director, Alzheimer’s Impact Movement and Senior Vice President, Public Policy, Alzheimer’s Association
Stephanie Monroe, President, The Wrenwood Group, LLC

Moderated by:

Daniel Rutherford Wilson, Senior Director of Government Affairs & Advocacy, National Council on Aging

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Breaking Down Barriers: Caregivers & the Challenges of CAR-T and BMT Requirements
2025-05-28 13:00 - 14:15
As cell therapies such as Chimeric Antigen Receptor T-Cell (CAR T) Therapy and Bone Marrow Transplant (BMT) continue to transform treatment options, they also introduce unique challenges, one of the most significant being the need for a 24/7 family caregiver during and after treatment. While these therapies offer lifesaving potential, their success often depends not just on the clinical care but on the dedicated round-the-clock support provided by caregivers.
Objectives:

Understand how caregiver involvement directly impacts the success of CAR T and BMT, from pretreatment to post-discharge support
Highlight the multifaceted burdens caregivers experience, including navigating the complex healthcare system and providing round-the-clock care
Share actionable solutions to enhance the caregiver experience and improve patient outcomes

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Caregiver Training Services Implementation Guide Webinar
2025-04-16 16:00 - 17:00 | https://www.caregiving.org/event/caregiver-training-services-implementation-guide-webinar/
Caregivers are essential members of a patient’s care team, yet they have often been overlooked and unsupported. This session will review changes to the Centers for Medicare & Medicaid Services (CMS) Medicare Physician Fee Schedule (PFS) that expand and improve services for family caregivers and Medicare beneficiaries. We will highlight two case studies of health systems implementing caregiver training services (CTS) and the lessons they learned. Attendees will also learn about the National Alliance for Caregiving’s efforts and recommendations for integrating family caregivers into cancer care through CTS codes.

Champions in Care Forum: Why Caregiver Input Matters in Defining Value in Healthcare
2025-01-09 15:00 - 16:00 | https://youtu.be/FftbS21xfi8
As the U.S. grapples with defining value in healthcare and medical interventions, there is growing recognition that integrating caregiver experiences and perspectives are vital to understanding a patient’s disease or condition journey. Yet, how to identify and collect relevant data from family caregivers to inform medical interventions remains in nascent stages.
Join us for a discussion on the value and importance of caregiver experiences, the current gaps in understanding of what matters most to caregivers, and how best practices for collecting this information to inform clinical, policy, and regulatory decision-making.

Gaps and Opportunities: Family Caregiver Programs in U.S. Transplant Centers
2024-12-11 13:00 - 14:00 | https://youtu.be/jwu-6fJg0fM
This webinar is part of the National Alliance for Caregiving (NAC)’s ongoing advocacy and research efforts to improve support for transplant caregivers, building on recommendations from the report, Transplant Caregiving in the US: A Call for Systems Change. Family caregivers are the “unsung heroes” in the transplantation process, managing waitlists, providing long-term follow up, assisting with complex needs, and navigating healthcare systems. Despite these challenges, they often go unrecognized and lack adequate support and resources.
During this webinar, NAC will share data from its latest report titled Gaps and Opportunities: Family Caregiver Programs in U.S. Transplant Centers, which examines the policies and practices for identifying, assessing, and supporting family caregivers across transplant centers. The data reveals that while 70% of transplant centers offer at least one type of caregiver support program only 3% of centers conduct regular caregiver assessments. The report also issues six recommendations to ensure that family caregivers are supported throughout the transplant journey. Participants will hear from healthcare experts, advocates, and family caregivers about the vital role caregivers play in transplant care. This discussion will be tailored for a variety of audiences, including transplant center providers, patient advocacy groups, policymakers, and researchers to highlight the need to recognize and support family caregivers to improve patient short- and long-term health and quality of life outcomes.
Attendees will be able to:

Understand the role of family caregivers in the transplant care
Learn about the availability of family caregiver support services based on a national survey of transplant centers
Identify the gaps and opportunities for improving support for family caregivers
Explore the current transplant delivery system reform efforts and their impact on family caregivers

Caregiver Nation Summit 2024
2024-11-20 07:00 - 09:00 | https://www.youtube.com/playlist?list=PLqooqFMD2JDsSNai8JCNe8rGPymVEVHcR
Recognition of America’s 53 million family caregivers – and the issues impacting them – has never been greater. While progress has been made, it’s not enough to meet the growing needs of family caregivers across the nation. Now is the time for unified action to make caregiving more sustainable, equitable, and dignified. Together we will:

Educate and Advocate: Hear from the nation’s leading voices on care and equip yourself with the knowledge and tools to effectively advocate for change with policymakers.
Raise Visibility: Shine a spotlight on the often-invisible work of family caregivers and the value of their contributions to our healthcare system, economy and communities.
Build Community: Foster collaboration and partnerships to drive action on our National Strategy to Support Family Caregivers.

The Caregiver Nation Summit is more than a conference; it’s a catalyst for change on our country’s first-ever National Strategy to Support Family Caregivers. It’s a platform for caregivers, advocates, policymakers, and movement leaders to come together to shape the future of care in our nation’s capital.
