The National Alliance for Caregiving’s Circle of Care library is a series of guidebooks dedicated to providing resources, support and information to caregivers caring for someone in a specific disease space. Currently comprised of three guidebooks, the series is an ongoing effort with patient-advocacy and consumer-facing partners to offer caregivers valuable knowledge and assistance as they navigate the journey of caring for a loved one.
The three guidebooks now in the series include:
- Circle of Care: A Guidebook for Mental Health Caregivers – completed in partnership with the National Alliance on Mental Illness and Mental Health America and developed with generous support from the Alkermes Inspiration Grant Program, this guidebook provides fact sheets to mental health caregivers on subjects ranging from finding the right provider to dealing with the criminal justice system to planning for the future.
- Circle of Care: A Guidebook for Caregivers of Children and Adolescents Managing Crohn’s Disease – this guidebook was developed with support from the Leona M. and Harry B. Helmsley Charitable Trust. The guidebook focuses on those caring for children and youth living with Crohn’s Disease, and provides an overview of the disease (complete with medical illustrations), information on aspects of managing healthcare, strategies to empower a child to manage their Crohn’s Disease, and suggestions for self-care as well as caring for the family.
- The Circle of Care Guidebook for Caregivers of Children with Rare and/or Serious Diseases – done in partnership with Global Genes and with support from Mallinckrodt Pharmaceuticals, this guidebook is aimed at providing information, support and resources to caregivers of children with rare and/or serious illnesses. The guidebook details how to go through the process of getting a diagnosis, managing a care team, finding treatment, and creating recreation and rest time for yourself, your child and your family. The guidebook also includes an appendix of resources for anyone caring for a child with a rare or serious disease.
NAC is proud to lend their expertise on caregiving through these guidebooks. To access the guidebooks for yourself and to share them with other caregivers in your life, please visit: https://www.caregiving.org/guidebooks/.