Health Systems

Building A Family-Centered Future

National Alliance for Caregiving Innovation Photo

The nation has begun to recognize the essential role unpaid friends and family members play in supporting individuals with ongoing health and care needs. Yet these informal supports systems are not sufficient to support the many Americans with care needs. Caregivers need support to continue to provide care and to care for themselves. Recognizing the value – the contributions, the expertise, the economic and health impact – of what caregivers do, as partners in innovation, is a key part of creating a more equitable, person- and family-centered health care system.

How Crisis Impacts the Way We Care: Understanding COVID-19’s Impact on Family Caregivers & Lessons for Future Challenges

Developed by the National Alliance for Caregiving (NAC) and the Adira Foundation, this infographic, the COVID-19 Caregiving Framework, depicts key points of crisis for caregivers during a global health emergency.

Take Care Community 

This platform, a collaboration between the National Alliance for Caregiving and the Adira Foundation, provides support to caregiver stakeholders by offering meaningful resources to support state, local, and national public health efforts as well as practical resources for families. The site allows caregiver stakeholders to submit resources to ensure the content improves and grows in the direction family caregivers and those who support them need.

Alzheimer’s Disease Caregiver Journey Map

NAC is proud to have joined the AgingWell Hub to create this integrated journey map for those caring for individuals with Alzheimer’s and other dementias. The map can be used to identify opportunities to provide support and intervention for caregivers, and in turn, to benefit their care recipients. Multiple players in today’s health care system — a pharmaceutical company, health care provider, health-related technology provider, university, leading national nonprofits and more — came together to share expert knowledge and proprietary research to develop the map from the perspective of consumers. The map captures the 360-degree experience of individuals caring for individuals with Alzheimer’s Disease or other serious cognitive impairment.

From Insight to Advocacy: Addressing Family Caregiving as a National Public Health Issue

This report identifies actions that can be taken to understand and address the impact of family caregiving on the public’s health. Current research indicates that unpaid family caregiving impacts not just individuals, but family units, communities, states, and the nation. From Insight to Advocacy: Addressing Family Caregiving as a National Public Health Issue describes family caregiving and the major caregiving issues affecting public health, including actions that can be taken specifically by state and local coalitions, health systems, and policymakers. The report also cites common data sources, identifies barriers to providing care within the aging network, and offers strategies on what caregiving advocates can do to get engaged.

This white paper was made possible by grant funding from Genentech. It was made possible through the contributions and direction of subject-matter experts in caregiving and public health, including representatives from Johns Hopkins Bloomberg School of Public Health, Appalachian State University, the Centers for Disease Control and Prevention, and the University of Pittsburgh.

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