World Carers

World Carers Conversation

National Alliance Caregiving World Carers Conversation Summit

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World Carers Conversation

13-17 December 2020 

COVID-19 has created new opportunities to re-examine the way that health care is delivered and the role of family caregivers in supporting better patient outcomes. Much like the WHO’s COVAX initiative to share data and research on caregiving and COVID-19, global partners in caregiving can offer insight and learnings that may make solutions for families more readily accessible to other caregiving communities around the world. The World Carers Conversation, to be convened from Sunday, 13 December 2020 through Wednesday, 16 December 2020, will showcase cutting edge caregiving research, innovation, and impact around the world as we collectively face the fallout from the global pandemic. This event will be hosted by the National Alliance for Caregiving and is made possible through the support of the Embracing Carers movement.

Registrants will have the opportunity to attend any day of the 5-day event:

  • Sunday, 13 December 2020 12-2 PM EST (GMT+5) – Welcome and Opening Musical Reception
  • Monday, 14 December 2020 3-6 PM EST (GMT +5) – Caregiving in the Americas
  • Tuesday, 15 December 2020 6-9 AM EST (GMT +5) – Caregiving in Europe, Africa, and the Middle East
  • Wednesday, 16 December 2020 7-10 PM EST (GMT+5) – Caregiving in Asia and the Pacific
  • Friday, 18 December 2020 6-8:00 AM EST (GMT+5) – Town Hall: A Comprehensive COVID-19  Framework (Invitation Only)

On Friday, 18 December, the National Alliance for Caregiving will be joined by the Adira Foundation for a global town hall on caregiving. Invited guests will get the chance to learn about and engage with our recent framework on the reality of caregiving during a pandemic, as well as hear from NAC and the Adira Foundation on our recent partnership to launch a digital education platform to support caregivers during the pandemic and beyond.

Summit Day 1 Registration

Summit Day 2 Registration

Summit Day 3 Registration

Summit Day 4 Registration

Event Speakers


Professor & Researcher at the University of Ghana
F. Akosua Agyemang, is a professor and researcher at the University of Ghana who focuses on social gerontology, and aging and community development. She co-authored a paper on long-term care…

Project Manager Department of Social Policy & Intervention at the University of Oxford
Isang Awah is a Project Manager in the Department of Social Policy and Intervention at the University of Oxford. She works on the development of the Parenting for Lifelong Health…

Director French Association of Caregivers
Director of the French association of caregivers since 2017, I am committed to a strategic project on a societal subject, caregivers, which has become the object of public policy construction…

CEO Carers Australia
Liz Callaghan is a highly regarded senior executive and CEO of Carers Australia, the peak body organization that works to inform and strengthen national policy, and the community and government’s…

Legal Officer of the Department of Social Inclusion of the Organization of American States (OAS
Mercedes Carrillo is Legal Officer of the Department of Social Inclusion of the Organization of American States (OAS) and Secretary of the OAS Administrative Tribunal. She holds a Ph.D. in…

President of Asociacion ALE, IAP
He has a bachelor’s degree in economics from (ITESM) Monterrey Institute of Technology. Upon the death of his grandson Alejandro, along with his daughter Adriana, the husband of her, and…

President & CEO of the National Hispanic Council on Aging (NHCOA)
Dr. Yanira Cruz is the President and CEO of the National Hispanic Council on Aging. She focuses on providing the Latino perspective on public health, older adult and caregiver issues…

Founder Heritage Medical Centre
Dr. K R Gangadharan is the founder of India’s premier private geriatric healthcare facility, Heritage Medical Centre in 1994 at Hyderabad. Thereafter, as a family business, he was involved in…

Jasmine Greenamyer currently serves as Vice President and Head of Global Strategic Partnerships. Overseeing global initiatives, including Embracing Carers and Healthy Women Healthy Economies, is a natural transition for Jasmine,…

Aisling returned to Ireland in 2006 to care for her father with Alzheimer’s disease, and now her mother with advanced Parkinson’s disease and dementia. Recently retired from 17 years osteopathic…

Executive Director at the Canadian Care Association
Nadine is the Executive Director of the Canadian Care Association. She is involved in national initiatives that support advocacy, awareness, and the advancement of excellent in-home care across Canada. Projects…

CEO & Co-Founder Carers NZ
Laurie Hilsgen is the CEO and a co-founder of Carers NZ, established by and for carers in 1995. Carers NZ is now a nationwide network of more than 50,000 carers…

Director of Policy and Public Affairs, Carers UK
Emily leads on Carers UK policy, parliamentary, research and media work, encompassing many issues relating to caring including employment. She was responsible for Carers UK’s Advice and Information services for…

Cameron James is a singer and songwriter from Nashville, TN. Her songs have been used in international commercials as well as in hit shows like Marvel Comics “Star Girl,” ABC’s…

President of Taiwan Association of Family Caregivers (TAFC)
Professor Tsuann Kuo currently serves as the President of Taiwan Association of Family Caregivers (TAFC) while teaches as an Associate Professor at Chung Shan Medical University (CSMU) in Taichung City,…

Founder, CEO of Caregivers Israel
Rachel a passionate social entrepreneur transformed her own private life-changing experience as a caregiver for her husband into a nonprofit organization putting Israeli caregivers at the top of the agenda.…

Executive Director of Care Alliance Ireland
Liam O'Sullivan works as the Executive Director of Care Alliance Ireland, an award winning alliance of over 95 not-for-profit organisations supporting Family Carers. His work with Care Alliance since 2004…

Chair of Carers NZ
Roger Palairet is the Chair of Carers NZ, the national peak body supporting family, whanau, and aiga carers in Aotearoa, New Zealand. He has many years of public sector and…

Executive Director Carers Worldwide
Anil has 25 years’ experience in the international development sector as a veterinarian, development practitioner, grant maker and trustee. Experiences in his professional and personal life led him to establish…

Jill Pitkeathley was born in Guernsey, Channel Islands and trained as a social worker .In 1986 she became Chief Executive of what was then the National Council for Carers and…

Executive Director of the National Domestic Workers Alliance
Ai-jen Poo is the co-founder and Executive Director of the National Domestic Workers Alliance, a non-profit organization working to bring quality work, dignity and fairness to the growing numbers of…

FAAN, SVP at AARP
Susan Reinhard, RN, PhD, FAAN, SVP at AARP, directs its Public Policy Institute, the focal point for state, federal and international policy research. Susan oversees PPI teams working on health…

Associate Professor - Department of Health Sciences at Dongduk Women’s University, Seoul, Korea
YongJoo Rhee is an associate professor for the Department of Health Sciences at Dongduk Women’s University, Seoul, Korea. Before joining Dongduk Women’s University in 2011, she worked as research faculty…

Executive Director at the World Dementia Council
Lenny is Executive Director at the World Dementia Council. Prior to that, he was Head of Community Engagement leading programs across the UK to establish Dementia Friendly Communities. This includes…

Joshua Harris was born eight weeks early, an example of the disparities occurring in medical care for African American mothers in pregnancy, labor and delivery. Josh had a Grade IV…

Director of Policy & Knowledge Translation at the Canadian Home Care Association and Carers Canada
Catherine Suridjan is the Director of Policy and Knowledge Translation at the Canadian Home Care Association and Carers Canada. She focuses on advocacy, strategic partnerships, and knowledge translation to promote…

Chief Executive at Carers UK
Helen joined Carers UK in December 2018, from the national volunteering charity TimeBank where she was Chief Executive for ten years. Since joining Carers UK she has focussed on ensuring…

President and Chief Executive Officer
At thirty-two, Grace followed in the footsteps of NAC Founder Gail Gibson Hunt to helm one of the nation’s leading public policy and advocacy organizations for friend and family caregivers.…

Professor of Integrated Human Studies and Graduate School of Social Work at Japan Lutheran College, Tokyo, Japan
Mai Yamaguchi is a professor in the Department of Integrated Human Studies and Graduate School of Social Work at Japan Lutheran College, Tokyo, Japan. She is also a certified social…

Executive Director, Eurocarers
Stecy Yghemonos is the Executive Director of Eurocarers, the European network working with and for informal carers. Eurocarers brings 73 organisations from 26 countries. Our collective efforts aim to ensure…

Shanghai Roots & Shoots
Career Zhenxi Zhong is the Executive Director of Shanghai Roots & Shoots (Shanghai R&S), a China government registered non-profit organization that she joined as high school intern and first staffmember.ShanghaiR&Sstaffof17workswithcloseto400schools(kindergartento…

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Professor & Researcher at the University of Ghana

F. Akosua Agyemang

F. Akosua Agyemang, is a professor and researcher at the University of Ghana who focuses on social gerontology, and aging and community development. She co-authored a paper on long-term care for older adults in Africa.

Project Manager Department of Social Policy & Intervention at the University of Oxford

Isang Awah

Isang Awah is a Project Manager in the Department of Social Policy and Intervention at the University of Oxford. She works on the development of the Parenting for Lifelong Health Digital (PLH Digital), a digital version of the in-person parenting programme. She also leads the dissemination of the COVID-19 parenting resources in West and Central Africa. Isang’s research interests include social issues and literacy especially in developing countries and poor communities around the globe. She holds a PhD in Education at the University of Cambridge, U.K. She also holds degrees from Harvard University, U.S.A., and the University of Uyo, Nigeria.

Director French Association of Caregivers

Clémentine Cabrières

Director of the French association of caregivers since 2017, I am committed to a strategic project on a societal subject, caregivers, which has become the object of public policy construction in France and internationally.

Prior to becoming a senior executive, I held responsibilities for nearly 10 years in human resources and management in Asia and then in France, in local authorities. I was formed in politics and management university and business school.

 

 

CEO Carers Australia

Liz Callaghan

Liz Callaghan is a highly regarded senior executive and CEO of Carers Australia, the peak body organization that works to inform and strengthen national policy, and the community and government’s understanding of unpaid carer issues.

Liz has held previous roles in Catholic Health Australia, the Australian Council on Healthcare Standards and the Department of Management at RMIT University Melbourne.
Liz recently spent four years as CEO of Palliative Care Australia, transforming the organization into one that was values driven, community focused and all about improving end-of-life care for all Australians. Prior to joining Carers Australia, Liz worked at the Department of Health on its Aged Care Royal Commission Taskforce.

Legal Officer of the Department of Social Inclusion of the Organization of American States (OAS

Mercedes Carrillo

Mercedes Carrillo is Legal Officer of the Department of Social Inclusion of the Organization of American States (OAS) and Secretary of the OAS Administrative Tribunal. She holds a Ph.D. in International Law and International Relations from the Complutense University of Madrid. She is the author of publications in Procedural Law, border conflicts, and social inclusion. She has served as a consultant for the Inter-American Commission of Women (2008) and as Secretary for the Inter-American Committee on Persons with Disabilities (2010 to present).

President of Asociacion ALE, IAP

Carlos A. Castro

He has a bachelor’s degree in economics from (ITESM) Monterrey Institute of Technology.

Upon the death of his grandson Alejandro, along with his daughter Adriana, the husband of her, and his wife, founded Asociacion ALE, I.A.P., a non-profit organization that promotes organ donor culture (public awareness), provides financial assistance for Mexican population, that doesn’t have medical aid, for access to transplant medicine. The institution is actively participating influencing public policies, in kidney and cardiovascular diseases, and to have in Mexico, universal health care and that this be provided in quality and opportunity.

He has participated in numerous Congress and Forum, nationally and internationally, speaking as the Voice of the Patient as an important stakeholder in decisions on Public Health.

He is co-author of a book “Politica Nacional de Fomento a la Salud Renal” a proposal of public policy for Kidney Disease for Mexico.

At the present, he is:

  • President of Asociacion ALE, IAP
  • Past-President of the Board of Trustees of iHHub The Global Voice Alliance of Heart Patients Organizations.
  • Member of the Board and President Elect of IFKF International Federation of Kidney Foundations.
  • President of FEMETRE Mexican Federation of Kidney Patients.
  • President of PACO (Pacientes del Corazon) Patients of the Heart

President & CEO of the National Hispanic Council on Aging (NHCOA)

Dr. Yanira Cruz

Dr. Yanira Cruz is the President and CEO of the National Hispanic Council on Aging. She focuses on providing the Latino perspective on public health, older adult and caregiver issues to increase policy-maker and public understanding of the needs impacting vulnerable sectors of our society and to encourage the adoption of programs and policies that equitably serve everyone. To further these efforts, Dr. Cruz serves on the National Senior Citizens Law Center, is a member of the American Society on Aging (ASA) for more than 10 years, and is a member of the Leaders of Aging Organizations (LAO). She is also a founding member of the Diverse Elders Coalition. Recently, Dr. Cruz was named one of the top 50 Influencers in Aging by Next Avenue. Dr. Cruz is an appointee serving on the Advisory Council on Alzheimer’s Research, Care, and Services, which advises the Secretary of the Department of Health and Human Services.

Dr. Cruz received her Bachelor of Science in Biology and holds a Master’s degree in Public Health and a Doctorate in Public Health with a specialty in global health from The George Washington University School of Public
Health and Health Services.

Founder Heritage Medical Centre

Dr. K R Gangadharan

Dr. K R Gangadharan is the founder of India’s premier private geriatric healthcare facility, Heritage Medical Centre in 1994 at Hyderabad. Thereafter, as a family business, he was involved in setting up two units of Kshetra and one unit of Kshemalayam. He has been involved with the Government of India’s Ministry of Social Justice and Empowerment in the formulation of National Policy on Older Persons 1999 and its review in 2010. He served the country’s highest body – National Council of Older Persons during 2006-2011 so appointed by the Ministry of Social Justice and Empowerment .

 

Jasmine Greenamyer, MPH

Jasmine Greenamyer currently serves as Vice President and Head of Global Strategic Partnerships. Overseeing global initiatives, including Embracing Carers and Healthy Women Healthy Economies, is a natural transition for Jasmine, who joined EMD Serono in 2016 as the Senior Director of Patient Advocacy and Strategic Partnerships for oncology and fertility. Her experience spans work including driving national and community public health interventions, advocating for health equity and increasing access to the early detection and treatment of cancer. In her role, Jasmine works with our global partners to advocate for women and caregivers to unleash their full economic potential by improving their health outcomes and providing them with resources to aide their journeys no matter their stage in life.

Prior to joining EMD Serono, Jasmine worked at the Colorectal Cancer Alliance for eight years, and has also worked with the Centers for Disease Control and Prevention, the U.S. Department of Education and the National Institute for Health.

Ms. Greenamyer received her Bachelor of Arts in Psychology from Michigan State University and a Master of Public Health from the University of Michigan. In addition, she completed the Performance Management program at Harvard Business School.

She lives in Virginia and is the proud mother of a precocious 8-year old.

Aisling Harmon

Aisling returned to Ireland in 2006 to care for her father with Alzheimer’s disease, and now her mother with advanced Parkinson’s disease and dementia. Recently retired from 17 years osteopathic practice, she advocated for osteopathic accreditation and regulation with UK, Irish ­­­­­and European osteopathic associations lobbying nationally and at European level. She has key transferable academic and clinical skills from her practice and teaching roles. With a keen interest in PPI and the translation of research to policy, she is regularly called on to represent the lived experience of dementia caring, and has extensive PPI experience as Expert Panelist/Speaker/Advocate/Research Participant/Project Advisory Group representative/HRB Funding Co-Applicant across a broad audience ranging from Academia to Not for Profit sectors, contributing to policy dialogue with public and state bodies. She is a Dementia Carer Campaign Network (ASI) Advocate and supports an online Family Carer Support Group with Care Alliance Ireland. She participated in the Irish Patient Education Program (IPPOSI) in 2019 and hopes to resume her postgraduate study curtailed by the COVID-19 pandemic.

BSc (HONS) Osteopathy  BA (HONS) European Business Studies

Executive Director at the Canadian Care Association

Nadine Henningsen

Nadine is the Executive Director of the Canadian Care Association. She is involved in national initiatives that support advocacy, awareness, and the advancement of excellent in-home care across Canada. Projects include strategic planning, healthy systems review, human resources development, primary health care, and information technology. She has written numerous papers and presented to federal commissions, senate committees, and provincial/regional planning groups on home care and caregiver related topics. She is an active participant on two national coalitions; as the President of the Canadian Caregiver Coalition, and Chair of the Advocacy Committee for the Quality End of Life Care Coalition of Canada. Nadine is also the Vice-President of the International Alliance of Carer Organizations, a global coalition dedicated to building awareness and recognition of caregivers. In 2012, Nadine was awarded the Queen Elizabeth Diamond Jubilee Medal for her outstanding contribution to home care and family caregivers.

CEO & Co-Founder Carers NZ

Laurie Hilsgen

Laurie Hilsgen is the CEO and a co-founder of Carers NZ, established by and for carers in 1995. Carers NZ is now a nationwide network of more than 50,000 carers and supporting organisations, and the Secretariat of the NZ Carers Alliance of almost 50 national not for profits. Laurie has acted as the Alliance’s Secretariat since 2004, working with NGOs in partnership with government to identify actions for and monitor the implementation of three Carers’ Strategy Action Plans. Laurie also publishes Family Care magazine, widely read by New Zealanders with health or disability support needs, the workforce, and families.

Director of Policy and Public Affairs, Carers UK

Emily Holzhausen OBE

Emily leads on Carers UK policy, parliamentary, research and media work, encompassing many issues relating to caring including employment. She was responsible for Carers UK’s Advice and Information services for 15 years, transforming the service into a wider digital offer. She has worked on two successful Private Members Bills and numerous pieces of legislation which have introduced carer’s rights. She leads Carers Week, one of the UK’s biggest awareness weeks involving thousands of local events and established Carers Rights Day now in its 19th year. Research and evidence has been at the heart of her work to demonstrate need and how change and practice can benefit carers.  She has undertaken over 40 pieces of original research into carers and caring, most recently with her team delivering Caring Behind Closed Doors, in April 2020 – one of the first major pieces of research on carers globally, with a six months on report due in October 2020.  Currently a board member of the International Alliance of Carer Organisations, she also chairs the Policy and Stakeholder Committee. In the UK, she is currently a Co-Chair of the Care and Support Alliance, an alliance of 70 organisations campaigning for better funding for social care. She also has been part of the COVID-19 response in the UK, sitting on the Government’s Adult Social Care COVID-19 Taskforce and co-chairing the Carers Advisory Group. Emily has been at Carers UK since 1996 and was awarded an OBE by the HM The Queen in 2015 for services to carers.

Cameron James

Cameron James is a singer and songwriter from Nashville, TN. Her songs have been used in international commercials as well as in hit shows like Marvel Comics “Star Girl,” ABC’s “Quantico, “MTV’s “The Hills: New Beginnings,” Bravo’s “Vanderpump Rules”, NBC’s “ American Ninja Warrior and “World of Dance.”  She co-wrote American Idol alum Danny Gokey’s hit single “The Comeback” which earned her a BMI award for being one of the biggest songs on Christian radio.

Cameron is also a wife and mother to three beautiful children; nine year old Elise, five year old Cade, and a little girl due late December of 2020. In November 2014, Elise was diagnosed with an ultra rare kidney/blood disease called Atypical Hemolytic Uremic Syndrome (aHUS). For every million there are an estimated two with the disease. Then in May 2017 the unthinkable happened when her husband’s onset of aHUS occurred. They were until recently the only known family in North America where there is a parent and child with this disease. They are the ultra rare of the ultra rare. Both Elise and James have made a complete “comeback” and now do their infusions of their life changing medicine together.

Cameron has become a major advocate in the rare disease community. She has traveled with her family to Washington DC on multiple occasions to lobby for legislation that protects rare disease patient’s ability to receive charitable assistance. She has shared her story and her music with a myriad of non profits and charities in hopes that her family’s story would encourage and inspire others.  It is without question that her family’s journey with rare disease has directly impacted Cameron’s music. She loves inspiring others with a message of hope and sharing her transformation from fear to faith.

President of Taiwan Association of Family Caregivers (TAFC)

Tsuann Kuo

Professor Tsuann Kuo currently serves as the President of Taiwan Association of Family Caregivers (TAFC) while teaches as an Associate Professor at Chung Shan Medical University (CSMU) in Taichung City, Taiwan. Established in 1996, TAFC serves as the only advocacy organization dedicating to caregivers’ rights and service development. In 2016, TAFC was also contracted by the Taiwan government to lead and advise its national long-term care services by supervising both local governments and organizations to implement various types of caregiver services, including care management, respite, caregiver education, support groups, psychological counseling, telephone line, and public education.

As a scholar trained in the U. S. with social work and gerontological backgrounds, Prof. Kuo also applied her previous experiences to conduct caregiving research and develop “dementia+family” service models at many Caregiver Resources Centers and Dementia Integrated Care Centers in Central Taiwan. Prof. Kuo received her Ph. D. and Master Degree in Social Welfare from the University of California, Los Angeles (UCLA) and two Master Degrees in Gerontology and Health Administration from the University of Southern California (USC). She had diverse practice experiences in the U. S., including a program developer for senior organizations, a medical social worker at the Veterans’ Hospital and a policy analyst/advocate for health and minority organizations. Prof. Kuo’s main research topics include cross-cultural caregiving issues, reminiscence and life review therapy for older adults, international comparisons on long-term care policies and programs, advocacy issues for caregivers, and Dementia program and care management for older adults.

Founder, CEO of Caregivers Israel

Rachel Ledany

Rachel a passionate social entrepreneur transformed her own private life-changing experience as a caregiver for her husband into a nonprofit organization putting Israeli caregivers at the top of the agenda.

‘Caregivers Israel’ (CGI), established in 2014, is committed to raising public awareness of the caregiving phenomenon and its personal, social, and national impacts.

Rachel’s work with CGI has developed impactful cross-sectorial relationships that yielded the establishment of policies for caregivers in the workplace, promoted research and academic involvement, and established online support and counseling center that is supporting thousands of family caregivers.

Moreover, engaged and powerful caregivers’ community was established and developed in Israel. During the Corona crisis, the dedication of CGI and the community together have led to unprecedented support provided for thousands of caregivers in Israel through the adoption of digital tools.

Rachel has qualifications in Psychology and Organizational counseling and she is chairing the ‘Strategic Projects and Communication Committee’ of IACO. Caregivers Israel is a full member of IACO.

Executive Director of Care Alliance Ireland

Liam O’Sullivan

Liam O’Sullivan works as the Executive Director of Care Alliance Ireland, an award winning alliance of over 95 not-for-profit organisations supporting Family Carers. His work with Care Alliance since 2004 has included bringing National Carers Week to Ireland, developing collaborative and impactful relationships with third level institutions in Family Carer research and establishing an online Family Carer support group engaging and supporting thousands. He has been actively involved in the international carers movement, initially with the establishment of Eurocarers, and more recently as a trustee of the International Alliance of Carer Organisations (IACO). He has qualifications in social work, youth and community studies, social research methods and most recently in Implementation Science. He has a particular interest in good governance and in bridging the gap between research policy and practice.

Chair of Carers NZ

Roger Palairet

Roger Palairet is the Chair of Carers NZ, the national peak body supporting family, whanau, and aiga carers in Aotearoa, New Zealand. He has many years of public sector and commercial law experience and currently acts as Chief Legal Counsel for one of New Zealand’s major District Health Boards. Roger has often acted as an advisor to the Carers Alliance, a coalition of almost 50 national health and disability sector NGOs focused on the challenges faced by carers, and also chairs one of New Zealand’s philanthropic community trusts.

Executive Director Carers Worldwide

Anil Patil

Anil has 25 years’ experience in the international development sector as a veterinarian, development practitioner, grant maker and trustee. Experiences in his professional and personal life led him to establish Carers Worldwide in 2012 and continue to fuel his passion to transform the lives of unpaid family carers across the globe.

He is now Executive Director of Carers Worldwide which works across India, Nepal and Bangladesh to bring about systemic change for family carers. More details can be found at www.carersworldwide.org

He is the Chair of the Membership, Recruitment and Engagement Committee of IACO, the International Alliance of Carer Organisations. He became an international Ashoka Fellow in 2015.

His specific interests include building an evidence base for support for family carers in South Asia, looking at the economic impacts of caring, and increasing the visibility of carers globally in order to influence policy and best practice.

Jill Pitkeathley

Jill Pitkeathley was born in Guernsey, Channel Islands and trained as a social worker .In 1986 she became Chief Executive of what was then the National Council for Carers and led the carers movement for the next 12 years, creating Carers National Association (now Carers UK) and turning what had been a private, hidden trouble, the needs of Great Britain’s six million carers, into a public issue, high on the political and social policy agenda.

Jill has held many chairing roles on government  or other public service agencies and is currently President of the National Council of Voluntary Organizations and Vice President of Carers UK .She is a former President of EuroCarers and has addressed many national and international conferences about caring agendas. She was raised to the peerage in 1997, sits on the Labour benches in the Upper House of the UK Parliament and is a very active working peer, specializing in health and social care issues. She is also a Deputy Speaker of the House of Lords, presiding at legislation, debates and questions.

Jill has written several books about caring, volunteering and being an only child, together with two novels about Jane Austen and her family.

 

Executive Director of the National Domestic Workers Alliance

Ai-jen Poo

Ai-jen Poo is the co-founder and Executive Director of the National Domestic Workers Alliance, a non-profit organization working to bring quality work, dignity and fairness to the growing numbers of workers who care and clean in our homes, the majority of whom are immigrants and women of color.  In 12 short years, with the help of more than 70 local affiliate organizations and chapters and over 200,000 members, the National Domestic Workers Alliance has passed Domestic Worker Bills of Rights in 9 states and the city of Seattle, and brought over 2 million home care workers under minimum wage protections.

Ai-jen believes the future can be glimpsed in the margins of our economy and society — both the potential threats on the horizon and the solutions.  Despite how important the work of caring and cleaning is to millions of American working families, domestic work has always been among the most undervalued and vulnerable jobs in the economy. It has existed outside of existing frameworks for social protection and benefits and yet is increasingly defining of the future of work.  As independent and contracted work becomes more the norm, more of the workforce struggles with similar conditions to domestic workers. And, economists widely agree, especially in light of the growing aging population, the demand for care work will only increase in coming years. Already, care work is consistently one of the fastest growing segments of our workforce — one that won’t be outsourced or automated. The experiences and innovation of domestic workers and the National Domestic Workers Alliance are instructive for shaping a dignified future of work for all.

Creativity and innovation are embedded in the DNA of the National Domestic Workers Alliance.

NDWA Labs is the innovation arm of the organization, which recently launched its first product, Alia. Alia is a groundbreaking technology platform that provides benefits such as paid time off and life insurance to domestic workers who have previously been unable to access a safety net.

NDWA has also pioneered a cultural organizing strategy to build a narrative about the dignity of work and the full humanity of women. Toward that goal, NDWA partnered with Participant Media and Oscar-winning director, Alfonso Cuarón, to shine a spotlight to the over 2.5 million domestic workers in the United States with the film, Roma

In 2011, Ai-jen launched Caring Across Generations to unite American families in a campaign to achieve bold solutions to the nation’s crumbling care infrastructure. The campaign has catalyzed groundbreaking policy change in states including the nation’s first family caregiver benefit in Hawaii, and the first long-term care social insurance fund in Washington State. Her widely acclaimed book The Age of Dignity: Preparing for the Elder Boom in a Changing America helps Americans make meaning of the need and opportunity in the elder boom — to improve access to care for all families while ensuring a strong care workforce for the future.  Noted political activist and feminist organizer Gloria Steinem called it “an urgent and irresistible book,” underscoring the overall message of The Age of Dignity: “people getting older is not a crisis, it’s a blessing.”

Ai-jen Poo is also a leading voice in the women’s movement. In 2019 along with Ceclie Richards and Alicia Garza, Ai-jen co-founded SuperMajority, a new home for women’s activism, training and mobilizing a multiracial, intergenerational community who will fight for gender equity together. Ai-jen serves as a Senior Advisor to Care in Action, a nonprofit, nonpartisan group dedicated to fighting for a civic voice for millions of women of color, particularly domestic workers in the United States.

She has been recognized among Fortune’s 50 World’s Greatest Leaders and Time’s 100 Most Influential People in the World, and she has been the recipient of countless awards, including a 2014 MacArthur “Genius” Award.  Ai-jen has been a featured speaker at TEDWomen, Aspen Ideas Festival, Cannes Lions Festival of Creativity, Skoll World Forum, and the Obama Foundation Inaugural Summit. She has made TV appearances on Nightline, MSNBC, and Morning Joe, and her writing has been featured in The New York Times, The Washington Post, TIME, Maire Claire, Glamour, Cosmopolitan and CNN.com among others. Ai-jen has been an influential voice in the #MeToo movement and attended the 2018 Golden Globe Awards with Meryl Streep as part of the launch of #TimesUp.

Ai-jen served as a member of the Bill and Melinda Gates Foundation sponsored Partnership for Mobility from Poverty, currently serves as a trustee of the Ford Foundation and a member of the Democratic National Committee. She has a BA from Columbia University and honorary doctorates from Smith College, the New School, and the City University of New York.

 

FAAN, SVP at AARP

Susan Reinhard, RN, PhD

Susan Reinhard, RN, PhD, FAAN, SVP at AARP, directs its Public Policy Institute, the focal point for state, federal and international policy research. Susan oversees PPI teams working on health security, financial security, and family, home, and community issues, and from that vantage point serves as editor-in-chief of Policy Plus Action: The AARP Public Policy Institute Newsletter. She also serves as Chief Strategist for the Center to Champion Nursing in America. She is a nationally recognized expert in health and long- term care, with extensive experience in conducting, directing and translating research to promote policy change. Previously, she served as Co-Director of Rutgers Center for State Health Policy, directing national initiatives to help people with disabilities live at home. She served three governors as Deputy Commissioner of the NJ Department of Health and Senior Services. Her research and policy expertise includes health care workforce, caregiving, consumer choice, community care options, and quality. A former faculty member at Rutgers College of Nursing, she is an American Academy of Nursing fellow. She holds a master’s degree from the University of Cincinnati and a PhD from Rutgers University.

Associate Professor - Department of Health Sciences at Dongduk Women’s University, Seoul, Korea

YongJoo Rhee

YongJoo Rhee is an associate professor for the Department of Health Sciences at Dongduk Women’s University, Seoul, Korea. Before joining Dongduk Women’s University in 2011, she worked as research faculty at the Department of Psychiatry and Behavioral Sciences, Northwestern University – Feinberg School of Medicine, Chicago in the United States.  Her research interest areas are caregiving, end-of-life care, outcome evaluation and mental health issues (dementia, depression).  Her main research interest is exploring health policy and system issues for the older adults to promote home death, and finding a way to providing better quality of care integrating medical services and community care.  She published a paper for a project to integrate medical and social services for the older frail Koreans to develop community care funded by Korean Institute for Health and Social Affairs.  She is currently working on a project for caregiving demand projections and their economic values for the older Koreans until 2065 in collaborating with Care Policy and Policy Evaluation Centre of London School of Economics and Political Science. She has been working with diverse international collaborators; the End-of-Life Care Research Group of Ghent University and Vrije Universiteit Brussel (International Place of Death, IPoD), Monash University, Clinical Outcomes Research group (depression productivity adjusted life years, PALYs). YongJoo received an M.P.H. Seoul National University, Seoul, Korea and Dr.P.H. from the University of Pittsburgh, Pittsburgh, USA.

Executive Director at the World Dementia Council

Lenny Shallcross

Lenny is Executive Director at the World Dementia Council. Prior to that, he was Head of Community Engagement leading programs across the UK to establish Dementia Friendly Communities. This includes the Dementia Friends program which is the biggest health social movement campaign delivered by 10,000 volunteers that have recruited 2 million individuals through a community, digital and corporate offer. Before working for Alzheimer’s Society he worked in the UK government as a political adviser at the Department for Culture, Media and Sport and the Department of Health as well as working in Parliament and for the Labour Party.

Debbi Simmons Harris

Joshua Harris was born eight weeks early, an example of the disparities occurring in medical care for African American mothers in pregnancy, labor and delivery. Josh had a Grade IV brain hemorrhage at birth and was for a time the sickest baby in the neonatal intensive care unit. The Harris family’s story is one of  how tribulation builds courage and changes lives.

Other than caring and managing her family, as well as an ICU-level nursing staff in her home, Debbi is a Director for the incoming Board of The Arc US; a family navigation specialist for Family Voices of Minnesota; a family leader for the Collaborative Improvement and Innovation Network (CoIIN) to Advance Care for Children with Medical Complexity (CMC); and, a Children and Youth with Special Health Care Needs National Research Network (CYSCHNet) partner.  Debbi is a public policy advocate as well, working with the national Workers Advisory Group (WAG) for Paid Leave and the National Caregiver Advocacy Collaborative of the National Alliance for Caregiving.

An undergraduate of Hamline University in St. Paul, Minnesota, Debbi has an M.S. in Health Science Administration, and an M.A. in English and Creative Writing, with a concentration in Nonfiction, Narrative Medicine. She has published in Today’s Caregiver magazine, Kaleidoscope, Existere—-Journal of Literature and Arts, at Salon.com, JAMA Pediatrics as a co-author, and has co-authored a manuscript on COVID-19 and children with disabilities to be published in the Journal of Pediatric Rehabilitation Medicine.

Debbi lives in the Twin Cities area of Minnesota and cares for Josh with her spouse Victor, a retired USMC officer with 33 years of service.

Director of Policy & Knowledge Translation at the Canadian Home Care Association and Carers Canada

Catherine Suridjan

Catherine Suridjan is the Director of Policy and Knowledge Translation at the Canadian Home Care Association and Carers Canada. She focuses on advocacy, strategic partnerships, and knowledge translation to promote awareness and discussion of the often-overlooked needs of family and friend caregivers across Canada. Through evidence and experience-driven research, Catherine provides leadership in the advancement of the Canadian Carer Strategy.

For the past 6 years, Catherine has developed and coordinated annual pan-Canadian awareness campaign including National Caregiver Day that resulted in the engagement of 2,000+ audiences, collaborations with 200+ partner organizations, the involvement of 40+ Members of Parliament, and federal endorsements from the Prime Minister, Minister of Seniors and Minister of Health. Globally, Catherine led the launch of “Innovative Carer Practices” (evidence-informed models to support physical-psycho-social needs of caregivers) that have been widely shared in practices across Canada, UK, Ireland, France, Taiwan and 10 other countries. Catherine also supports the communication secretariat function of the International Alliance of Carer Organization (IACO) and a key member of the IACO’s Policy and Stakeholder Relations Committee.

Catherine holds a Master of Social Work and an Honours Bachelor of Science from the University of Toronto, as well as an Honours Bachelor of Social Work from Lakehead University.

Chief Executive at Carers UK

Helen Walker

Helen joined Carers UK in December 2018, from the national volunteering charity TimeBank where she was Chief Executive for ten years. Since joining Carers UK she has focussed on ensuring the financial stability and growth of the charity in order to launch an ambitious new strategy in 2021. Helen has been appointed to represent carers on the NHS Assembly, the body brought together to advise NHS England and NHS Improvement on the delivery of the NHS Long Term Plan, as well as the National Institute for Health Research, School for Social Care Research Advisory Board at the LSE.
Her extensive leadership experience and sector knowledge saw her create a well-respected and successful brand at TimeBank, leaving the charity on a secure financial footing. Previously, Helen was Director of Fundraising at the military charity SSAFA and has worked in the voluntary sector for over 25 years. Brought up on the Isle of Man, she studied for a degree and M.Phil at the London School of Economics.

President and Chief Executive Officer

C. Grace Whiting, J.D.

At thirty-two, Grace followed in the footsteps of NAC Founder Gail Gibson Hunt to helm one of the nation’s leading public policy and advocacy organizations for friend and family caregivers. With previous experience as COO and the Director of Strategic Partnerships, Grace has doubled the budget of the organization in her tenure to date and created the Hunt Research Program.

Grace led the nation’s first national policy study of 1,400+ rare disease caregivers with Global Genes. She has led other original NAC research including Sandwich Generation in the U.S. with Caring Across Generations; A National Study of Caregivers of Individuals with Crohn’s Disease or Ulcerative Colitis with the Crohn’s and Colitis Foundation and ImproveCareNow; Cancer Caregiving in the U.S. with the National Cancer Institute and Cancer Support Community; and Dementia Caregiving in the U.S. with the Alzheimer’s Association, among others.

Grace has spoken on caregiving at national and international conferences, including the 7th International Carers Conference in Adelaide, Australia, and at multiple national summits at the National Institutes of Health. Grace has also served as a resource to major media on the topic of caregiving and aging, including C-SPAN, The Wall Street Journal, Time Magazine, Oprah Magazine, Women’s Health Magazine, and Kiplinger’s Retirement Report. Grace was chosen as one of twenty PBS Next Avenue 2020 Influencers in Aging.

A licensed attorney with the D.C. Bar, Grace was named an “Outstanding Law Student” by the National Association of Women Lawyers after earning her law degree from the University of Memphis. She is a proud graduate of the Louisiana State University Honors College in communication studies and philosophy. Grace lives in Silver Spring, Maryland with her husband, writer Geoffrey Whiting, and their distinguished pug, Chief Justice.

Professor of Integrated Human Studies and Graduate School of Social Work at Japan Lutheran College, Tokyo, Japan

Mai Yamaguchi, PhD., MSG

Mai Yamaguchi is a professor in the Department of Integrated Human Studies and Graduate School of Social Work at Japan Lutheran College, Tokyo, Japan. She is also a certified social worker and Director of Carers Japan. She is one of the committee members of the Policy and Strategy Working Group of the International Alliance of Carers Organization (IACO). She received her Master’s Degree in Gerontology from the University of Southern California, USA in 2001 and her Doctor’s Degree in Social Work from Sophia University, Japan in 2005. Her research interests include supporting carers, the care mix for the elderly, long term care services, socialization of care, and social work in health and care organizations. She received Grant-in-Aid for Scientific Research (KAKENHI) (B) from JPSP (Japanese Society of Promotion of Science) twice as lead researcher and several times as co-researcher. She also received Fund for Japan-Lithuania Joint Seminar from JPSP.

Major articles and papers

  • Yamaguchi, M. (2020). Well-being and Turnover Intentions of Japanese Working Carers: What Do They Feel about Balancing Work and Care? The Japan Institute for Labour Policy and Training (JILPT) Research Paper No.203, p43-61 (in Japanese).
  • Yamaguchi, M. & Rand, S. (2019). Issues and Challenges in comparing Carers’ Quality of Life in England and Japan: Lessons from developing a Japanese-version of the ASCOT-Carer, International Journal of Care and Caring, 3-3, 459-464.
  • Yamaguchi, M. (2019) Challenges in Carer Support at Community Comprehensive Support Centres: Focusing on Difficulties in Supporting Carers, Bulletin of the Japan Lutheran College and Theological Seminary, 52, 1-12 (in Japanese).

Executive Director, Eurocarers

Stecy Yghemonos

Stecy Yghemonos is the Executive Director of Eurocarers, the European network working with and for informal carers. Eurocarers brings 73 organisations from 26 countries. Our collective efforts aim to ensure that the growing care needs of the European population are addressed in a universal and equitable way and that the vital contribution of informal carers is valued, recognised and supported.

A trained journalist, Stecy is an EU policy and communication specialist. Over the last seventeen years he has acted as a Project, Advocacy and Communications Director in organisations supporting the implementation and reinforcement of EU policies in the areas of press freedom, social equity, children’s rights, development, health and social care. Together with the Eurocarers Steering Committee he sets the direction of the Eurocarers network, develops and oversees the implementation of the action plan. He is also responsible for the Eurocarers secretariat in Brussels.

Shanghai Roots & Shoots

Zhenxi Zhong

Career

Zhenxi Zhong is the Executive Director of Shanghai Roots & Shoots (Shanghai R&S), a China government registered non-profit organization that she joined as high school intern and first staffmember.ShanghaiR&Sstaffof17workswithcloseto400schools(kindergartento university) and thousands of volunteers in and around Shanghai. In addition to environmental education and organic gardening programs at the schools, its longstanding programs include the “Million Tree Project,” which is now nearing planting of millions of treesindesertifiedareasof InnerMongoliaandNingxia,healthandnutritioneducationand servicesforthousandsof migrantworkerchildren,apioneeringprogramtoprovidesocial services to cancer patients and their families. Shanghai R&S programs have been recognizedglobally;forexample,theMillion TreeProjectwaspartoftheclimatechange videothatopenedthe2016RioOlympicsandUS FirstLadyMichelleObamarecognizedthe Shanghai R&S Organic Garden program. Shanghai

R&S programs have been sustained by China-based non-governmental sources including Alibaba, Tencent Foundation, Disney Shanghai, Unilever, Standard Chartered Bank, Asahi Kasei, AmorePacific, Ferrari Maserati, amongst many other donors.

Leadership Honors

Zhenxi Zhong received the 2016 Future Leaders Award from the Shanghai American Chamber of Commerce, was selected to participate in the Environmental Education Program for Future LeadersSouthEastAsiahostedbytheJapanFoundation,wasselected for Changing Faces Women’s Leadership Seminar organized by the East-West Center (in Hawaii), and was selected as a young leader by the US government International Visitors Program to visit leading NGOs in the US.

She was one of the two recipients of Fung Fellowship upon admission into the Master of Global PublicPolicyProgramjointlyconferredbytheUniversityofSouthernCaliforniaand the University of Hong Kong.

Education

Zhenxi Zhong was awarded a bachelor’s degree in Economics from Fudan University (2004) and aMaster’sdegreeinGlobalPublicPolicyfromtheUniversityofHongKong/University of SouthernCalifornia(2018).Inaddition,shehasreceivedscholarshipsfortraininginthe International Education for Sustainability Program from the Swedish International Development Agency, was selected for the Patient Advocacy Scholar Program by Global Institute for Health Policy and Public Health at Harvard University, and was selected for training by the Honorable Al Gore and is a certified presenter for The Climate Project.

Zhenxi is a native of Shanghai and speaks fluent Mandarin and English.