World Carers

World Carers Conversation

National Alliance Caregiving World Carers Conversation Summit

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World Carers Conversation

13-17 December 2020 

COVID-19 has created new opportunities to re-examine the way that health care is delivered and the role of family caregivers in supporting better patient outcomes. Much like the WHO’s COVAX initiative to share data and research on caregiving and COVID-19, global partners in caregiving can offer insight and learnings that may make solutions for families more readily accessible to other caregiving communities around the world. The World Carers Conversation, to be convened from Sunday, 13 December 2020 through Wednesday, 16 December 2020, will showcase cutting edge caregiving research, innovation, and impact around the world as we collectively face the fallout from the global pandemic. This event will be hosted by the National Alliance for Caregiving and is made possible through the support of the Embracing Carers movement.

Registrants will have the opportunity to attend any day of the 5-day event:

On Thursday, 17 December, the National Alliance for Caregiving will be joined by the Adira Foundation for a global town hall on caregiving. Invited guests will get the chance to learn about and engage with our recent framework on the reality of caregiving during a pandemic, as well as hear from NAC and the Adira Foundation on our recent partnership to launch a digital education platform to support caregivers during the pandemic and beyond.

Speakers

Day 1:

Jasmine Greenmayer, Head, Global Strategic Partnerships, Global Healthcare Govt. & Public Affairs

EMD Serono | Merck KGaA, Darmstadt, Germany

Cameron James

Day 2:

Ai-Jen Poo, Director, National Domestic Workers Alliance & Co-Director, Caring Across Generations (USA)

Susan C. Reinhard, RN, Ph.D., FAAN, Senior Vice President and Director, AARP Public Policy Institute & Chief Strategist, Center to Champion Nursing in America, AARP (USA)

Carlos Castro Sánchez, Presidente Ejecutivo, Asociacion ALE IAP (Mexico)

Gabriela N. Prudencio, M.A., M.B.A., Hunt Research Director, National Alliance for Caregiving (USA)

Francisco Folch, Psicólogo Clínico, Unidad de Cuidados Paliativos y Alivio del Dolor, Clínica Alemana de Valdivia (Chile)

Manuela Rueda, Freelance Journalist

Mercedes Carrillo, Organization of American States

Day 3:

Lenny Shallcross, Executive Director, World Dementia Council (Global)

Stecy Yghemonos, Executive Director, Eurocarers (Europe)

Rachel Ledany, CEO and Co-Founder, Caregivers Israel (Israel)

Emily Holzhausen OBE, Director of Policy and Public Affairs, Carers UK (United Kingdom)

Liam O’Sullivan, Executive Director, Care Alliance Ireland (Ireland)

Day 4:

Dr. K R Gangadharan, Heritage Medical Centre, Heritage Eldercare Services, Heritage Foundation (India)

Zhenxi “ZeeZee” Zhong, Shanghai Roots & Shoots (China)

Mai Yamaguchi, Carers Japan (Japan) 

YongJoo Rhee, MPH, DrPH, MPH, DrPH, Associate Professor, Department of Health Sciences, College of Natural Science, Dongduk Women’s University (South Korea)

Tsuann Kuo, Ph.D., Taiwan Association of Family Caregivers (Taiwan)

Laurie Hilsgen, Carers New Zealand (New Zealand)

Agenda

Day 1 – Welcome Reception

Sunday, 13 December 2020, TIME TBA

Day 2 – Caregiving in the Americas

Monday, 14 December 2020, 15:00 – 18:00 Eastern Standard Time

Presentations include a fireside chat, a panel discussion on caregiving in North and Central America, an interactive caregiver presentation and ten-minute break, a panel discussion on caregiving in South America, and closing remarks.

Day 3 – Caregiving in Europe, Africa, and the Middle East

Tuesday, 15 December 2020, 6:00 – 9:00 Eastern Standard Time

Presentations include a fireside chat, a panel discussion on caregiving in the Middle East and Africa, an interactive caregiver presentation and ten-minute break, a panel discussion on caregiving in Europe, and closing remarks.

Day 4 – Caregiving in Asia and the Pacific

Wednesday, 16 December 2020, 19:00 – 22:00 Eastern Standard Time

Presentations include a fireside chat, a panel discussion on caregiving in Asia, an interactive caregiver presentation and ten-minute break, a panel discussion on caregiving in the South Pacific, and closing remarks.

Day 5 – World Carers Conversation Town Hall: A Comprehensive COVID-19 Framework  

Thursday, 17 December 2020, Time TBA

Presentations include a discussion on the COVID-19 and Caregiving Framework, developed by the National Alliance for Caregiving and the Adira Foundation, followed by breakout sessions to garner community feedback on the framework, and a presentation of NAC and Adira’s partnership on a new digital education platform to support caregivers during the pandemic and beyond.

Summit Day 1 Registration

Summit Day 2 Registration

Summit Day 3 Registration

Summit Day 4 Registration

Event Speakers


Executive Director of the National Domestic Workers Alliance
Ai-jen Poo is the co-founder and Executive Director of the National Domestic Workers Alliance, a non-profit organization working to bring quality work, dignity and fairness to the growing numbers of…

President of Asociacion ALE, IAP
He has a bachelor’s degree in economics from (ITESM) Monterrey Institute of Technology. Upon the death of his grandson Alejandro, along with his daughter Adriana, the husband of her, and…

Director of Policy and Public Affairs, Carers UK
Emily leads on Carers UK policy, parliamentary, research and media work, encompassing many issues relating to caring including employment. She was responsible for Carers UK’s Advice and Information services for…

Associate Professor - Department of Health Sciences at Dongduk Women’s University, Seoul, Korea
YongJoo Rhee is an associate professor for the Department of Health Sciences at Dongduk Women’s University, Seoul, Korea. Before joining Dongduk Women’s University in 2011, she worked as research faculty…

Professor of Integrated Human Studies and Graduate School of Social Work at Japan Lutheran College, Tokyo, Japan
Mai Yamaguchi is a professor in the Department of Integrated Human Studies and Graduate School of Social Work at Japan Lutheran College, Tokyo, Japan. She is also a certified social…

FAAN, SVP at AARP
Susan Reinhard, RN, PhD, FAAN, SVP at AARP, directs its Public Policy Institute, the focal point for state, federal and international policy research. Susan oversees PPI teams working on health…

President of Taiwan Association of Family Caregivers (TAFC)
Professor Tsuann Kuo currently serves as the President of Taiwan Association of Family Caregivers (TAFC) while teaches as an Associate Professor at Chung Shan Medical University (CSMU) in Taichung City,…

Executive Director of Care Alliance Ireland
Liam O'Sullivan works as the Executive Director of Care Alliance Ireland, an award winning alliance of over 95 not-for-profit organisations supporting Family Carers. His work with Care Alliance since 2004…

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Executive Director of the National Domestic Workers Alliance

Ai-jen Poo

Ai-jen Poo is the co-founder and Executive Director of the National Domestic Workers Alliance, a non-profit organization working to bring quality work, dignity and fairness to the growing numbers of workers who care and clean in our homes, the majority of whom are immigrants and women of color.  In 12 short years, with the help of more than 70 local affiliate organizations and chapters and over 200,000 members, the National Domestic Workers Alliance has passed Domestic Worker Bills of Rights in 9 states and the city of Seattle, and brought over 2 million home care workers under minimum wage protections.

Ai-jen believes the future can be glimpsed in the margins of our economy and society — both the potential threats on the horizon and the solutions.  Despite how important the work of caring and cleaning is to millions of American working families, domestic work has always been among the most undervalued and vulnerable jobs in the economy. It has existed outside of existing frameworks for social protection and benefits and yet is increasingly defining of the future of work.  As independent and contracted work becomes more the norm, more of the workforce struggles with similar conditions to domestic workers. And, economists widely agree, especially in light of the growing aging population, the demand for care work will only increase in coming years. Already, care work is consistently one of the fastest growing segments of our workforce — one that won’t be outsourced or automated. The experiences and innovation of domestic workers and the National Domestic Workers Alliance are instructive for shaping a dignified future of work for all.

Creativity and innovation are embedded in the DNA of the National Domestic Workers Alliance.

NDWA Labs is the innovation arm of the organization, which recently launched its first product, Alia. Alia is a groundbreaking technology platform that provides benefits such as paid time off and life insurance to domestic workers who have previously been unable to access a safety net.

NDWA has also pioneered a cultural organizing strategy to build a narrative about the dignity of work and the full humanity of women. Toward that goal, NDWA partnered with Participant Media and Oscar-winning director, Alfonso Cuarón, to shine a spotlight to the over 2.5 million domestic workers in the United States with the film, Roma

In 2011, Ai-jen launched Caring Across Generations to unite American families in a campaign to achieve bold solutions to the nation’s crumbling care infrastructure. The campaign has catalyzed groundbreaking policy change in states including the nation’s first family caregiver benefit in Hawaii, and the first long-term care social insurance fund in Washington State. Her widely acclaimed book The Age of Dignity: Preparing for the Elder Boom in a Changing America helps Americans make meaning of the need and opportunity in the elder boom — to improve access to care for all families while ensuring a strong care workforce for the future.  Noted political activist and feminist organizer Gloria Steinem called it “an urgent and irresistible book,” underscoring the overall message of The Age of Dignity: “people getting older is not a crisis, it’s a blessing.”

Ai-jen Poo is also a leading voice in the women’s movement. In 2019 along with Ceclie Richards and Alicia Garza, Ai-jen co-founded SuperMajority, a new home for women’s activism, training and mobilizing a multiracial, intergenerational community who will fight for gender equity together. Ai-jen serves as a Senior Advisor to Care in Action, a nonprofit, nonpartisan group dedicated to fighting for a civic voice for millions of women of color, particularly domestic workers in the United States.

She has been recognized among Fortune’s 50 World’s Greatest Leaders and Time’s 100 Most Influential People in the World, and she has been the recipient of countless awards, including a 2014 MacArthur “Genius” Award.  Ai-jen has been a featured speaker at TEDWomen, Aspen Ideas Festival, Cannes Lions Festival of Creativity, Skoll World Forum, and the Obama Foundation Inaugural Summit. She has made TV appearances on Nightline, MSNBC, and Morning Joe, and her writing has been featured in The New York Times, The Washington Post, TIME, Maire Claire, Glamour, Cosmopolitan and CNN.com among others. Ai-jen has been an influential voice in the #MeToo movement and attended the 2018 Golden Globe Awards with Meryl Streep as part of the launch of #TimesUp.

Ai-jen served as a member of the Bill and Melinda Gates Foundation sponsored Partnership for Mobility from Poverty, currently serves as a trustee of the Ford Foundation and a member of the Democratic National Committee. She has a BA from Columbia University and honorary doctorates from Smith College, the New School, and the City University of New York.

 

President of Asociacion ALE, IAP

Carlos A. Castro

He has a bachelor’s degree in economics from (ITESM) Monterrey Institute of Technology.

Upon the death of his grandson Alejandro, along with his daughter Adriana, the husband of her, and his wife, founded Asociacion ALE, I.A.P., a non-profit organization that promotes organ donor culture (public awareness), provides financial assistance for Mexican population, that doesn’t have medical aid, for access to transplant medicine. The institution is actively participating influencing public policies, in kidney and cardiovascular diseases, and to have in Mexico, universal health care and that this be provided in quality and opportunity.

He has participated in numerous Congress and Forum, nationally and internationally, speaking as the Voice of the Patient as an important stakeholder in decisions on Public Health.

He is co-author of a book “Politica Nacional de Fomento a la Salud Renal” a proposal of public policy for Kidney Disease for Mexico.

At the present, he is:

  • President of Asociacion ALE, IAP
  • Past-President of the Board of Trustees of iHHub The Global Voice Alliance of Heart Patients Organizations.
  • Member of the Board and President Elect of IFKF International Federation of Kidney Foundations.
  • President of FEMETRE Mexican Federation of Kidney Patients.
  • President of PACO (Pacientes del Corazon) Patients of the Heart

Director of Policy and Public Affairs, Carers UK

Emily Holzhausen OBE

Emily leads on Carers UK policy, parliamentary, research and media work, encompassing many issues relating to caring including employment. She was responsible for Carers UK’s Advice and Information services for 15 years, transforming the service into a wider digital offer. She has worked on two successful Private Members Bills and numerous pieces of legislation which have introduced carer’s rights. She leads Carers Week, one of the UK’s biggest awareness weeks involving thousands of local events and established Carers Rights Day now in its 19th year. Research and evidence has been at the heart of her work to demonstrate need and how change and practice can benefit carers.  She has undertaken over 40 pieces of original research into carers and caring, most recently with her team delivering Caring Behind Closed Doors, in April 2020 – one of the first major pieces of research on carers globally, with a six months on report due in October 2020.  Currently a board member of the International Alliance of Carer Organisations, she also chairs the Policy and Stakeholder Committee. In the UK, she is currently a Co-Chair of the Care and Support Alliance, an alliance of 70 organisations campaigning for better funding for social care. She also has been part of the COVID-19 response in the UK, sitting on the Government’s Adult Social Care COVID-19 Taskforce and co-chairing the Carers Advisory Group. Emily has been at Carers UK since 1996 and was awarded an OBE by the HM The Queen in 2015 for services to carers.

Associate Professor - Department of Health Sciences at Dongduk Women’s University, Seoul, Korea

YongJoo Rhee

YongJoo Rhee is an associate professor for the Department of Health Sciences at Dongduk Women’s University, Seoul, Korea. Before joining Dongduk Women’s University in 2011, she worked as research faculty at the Department of Psychiatry and Behavioral Sciences, Northwestern University – Feinberg School of Medicine, Chicago in the United States.  Her research interest areas are caregiving, end-of-life care, outcome evaluation and mental health issues (dementia, depression).  Her main research interest is exploring health policy and system issues for the older adults to promote home death, and finding a way to providing better quality of care integrating medical services and community care.  She published a paper for a project to integrate medical and social services for the older frail Koreans to develop community care funded by Korean Institute for Health and Social Affairs.  She is currently working on a project for caregiving demand projections and their economic values for the older Koreans until 2065 in collaborating with Care Policy and Policy Evaluation Centre of London School of Economics and Political Science. She has been working with diverse international collaborators; the End-of-Life Care Research Group of Ghent University and Vrije Universiteit Brussel (International Place of Death, IPoD), Monash University, Clinical Outcomes Research group (depression productivity adjusted life years, PALYs). YongJoo received an M.P.H. Seoul National University, Seoul, Korea and Dr.P.H. from the University of Pittsburgh, Pittsburgh, USA.

Professor of Integrated Human Studies and Graduate School of Social Work at Japan Lutheran College, Tokyo, Japan

Mai Yamaguchi, PhD., MSG

Mai Yamaguchi is a professor in the Department of Integrated Human Studies and Graduate School of Social Work at Japan Lutheran College, Tokyo, Japan. She is also a certified social worker and Director of Carers Japan. She is one of the committee members of the Policy and Strategy Working Group of the International Alliance of Carers Organization (IACO). She received her Master’s Degree in Gerontology from the University of Southern California, USA in 2001 and her Doctor’s Degree in Social Work from Sophia University, Japan in 2005. Her research interests include supporting carers, the care mix for the elderly, long term care services, socialization of care, and social work in health and care organizations. She received Grant-in-Aid for Scientific Research (KAKENHI) (B) from JPSP (Japanese Society of Promotion of Science) twice as lead researcher and several times as co-researcher. She also received Fund for Japan-Lithuania Joint Seminar from JPSP.

Major articles and papers

  • Yamaguchi, M. (2020). Well-being and Turnover Intentions of Japanese Working Carers: What Do They Feel about Balancing Work and Care? The Japan Institute for Labour Policy and Training (JILPT) Research Paper No.203, p43-61 (in Japanese).
  • Yamaguchi, M. & Rand, S. (2019). Issues and Challenges in comparing Carers’ Quality of Life in England and Japan: Lessons from developing a Japanese-version of the ASCOT-Carer, International Journal of Care and Caring, 3-3, 459-464.
  • Yamaguchi, M. (2019) Challenges in Carer Support at Community Comprehensive Support Centres: Focusing on Difficulties in Supporting Carers, Bulletin of the Japan Lutheran College and Theological Seminary, 52, 1-12 (in Japanese).

FAAN, SVP at AARP

Susan Reinhard, RN, PhD

Susan Reinhard, RN, PhD, FAAN, SVP at AARP, directs its Public Policy Institute, the focal point for state, federal and international policy research. Susan oversees PPI teams working on health security, financial security, and family, home, and community issues, and from that vantage point serves as editor-in-chief of Policy Plus Action: The AARP Public Policy Institute Newsletter. She also serves as Chief Strategist for the Center to Champion Nursing in America. She is a nationally recognized expert in health and long- term care, with extensive experience in conducting, directing and translating research to promote policy change. Previously, she served as Co-Director of Rutgers Center for State Health Policy, directing national initiatives to help people with disabilities live at home. She served three governors as Deputy Commissioner of the NJ Department of Health and Senior Services. Her research and policy expertise includes health care workforce, caregiving, consumer choice, community care options, and quality. A former faculty member at Rutgers College of Nursing, she is an American Academy of Nursing fellow. She holds a master’s degree from the University of Cincinnati and a PhD from Rutgers University.

President of Taiwan Association of Family Caregivers (TAFC)

Tsuann Kuo

Professor Tsuann Kuo currently serves as the President of Taiwan Association of Family Caregivers (TAFC) while teaches as an Associate Professor at Chung Shan Medical University (CSMU) in Taichung City, Taiwan. Established in 1996, TAFC serves as the only advocacy organization dedicating to caregivers’ rights and service development. In 2016, TAFC was also contracted by the Taiwan government to lead and advise its national long-term care services by supervising both local governments and organizations to implement various types of caregiver services, including care management, respite, caregiver education, support groups, psychological counseling, telephone line, and public education.

As a scholar trained in the U. S. with social work and gerontological backgrounds, Prof. Kuo also applied her previous experiences to conduct caregiving research and develop “dementia+family” service models at many Caregiver Resources Centers and Dementia Integrated Care Centers in Central Taiwan. Prof. Kuo received her Ph. D. and Master Degree in Social Welfare from the University of California, Los Angeles (UCLA) and two Master Degrees in Gerontology and Health Administration from the University of Southern California (USC). She had diverse practice experiences in the U. S., including a program developer for senior organizations, a medical social worker at the Veterans’ Hospital and a policy analyst/advocate for health and minority organizations. Prof. Kuo’s main research topics include cross-cultural caregiving issues, reminiscence and life review therapy for older adults, international comparisons on long-term care policies and programs, advocacy issues for caregivers, and Dementia program and care management for older adults.

Executive Director of Care Alliance Ireland

Liam O’Sullivan

Liam O’Sullivan works as the Executive Director of Care Alliance Ireland, an award winning alliance of over 95 not-for-profit organisations supporting Family Carers. His work with Care Alliance since 2004 has included bringing National Carers Week to Ireland, developing collaborative and impactful relationships with third level institutions in Family Carer research and establishing an online Family Carer support group engaging and supporting thousands. He has been actively involved in the international carers movement, initially with the establishment of Eurocarers, and more recently as a trustee of the International Alliance of Carer Organisations (IACO). He has qualifications in social work, youth and community studies, social research methods and most recently in Implementation Science. He has a particular interest in good governance and in bridging the gap between research policy and practice.