Open Data Project
As part of a national effort to open data to innovators, businesses, and non-profits, the National Alliance for Caregiving is proud to provide open data sets from our national studies for others to use in their research and policy analysis.
Caregiving in America: 1997, 2004, 2009, 2015, and 2020
First conducted in 1997 by the National Alliance for Caregiving and AARP, the Caregiving in the U.S. studies are widely regarded as one of the most authoritative resources available to describe the American caregiver. With previous studies conducted in 2004 and 2009, each edition provides new information on demographics and other factors affecting caregiving.
In addition to the Caregiving in the U.S. studies, NAC has partnered with a number of stakeholders to do a “deep dive” of the caregiving experience facing special populations of caregivers. From Alzheimer’s to retirement, rare disease to working caregivers, NAC has taken a second look at the challenges facing caregivers across the lifespan.
Circle of Care Guidebooks
Circle of Care is designed to guide unpaid friends, family, and neighbors who care for someone with “a chronic or other health condition, disability, or functional limitation” (From the RAISE Family Caregivers Act of 2018 (P.L. No: 115-119). The fact sheets are intended to assist caregivers throughout their journeys.