Our mission is to be an objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients. To that end, the National Alliance for Caregiving has been a leader in research on family caregiving since 1996.
We recognize that the nearly 44 million family caregivers in the U.S. – nearly 20% of the U.S. adult population – provide important societal and financial contributions toward maintaining the well-being of those they care for. Through national surveys, our research identifies important new trends and sheds light on the varying needs of this huge and diverse group.
|Open Data Project
As part of a national effort to open data to innovators, businesses, and non-profits, the National Alliance for Caregiving is proud to share the following data sets. To learn more about the Open Data project, click here. To download our data sets, click here.
|Rare Disease Caregiving Project
Join the national study on the friends, family, and neighbors who are caring for someone with a rare disease, condition, or disorder. This one-of-a-kind survey will be open to the public from Wednesday, September 13 through Tuesday, October 31. Learn more here.
Areas of Research
|Caregiving in the U.S. 2015
Caregiving in the U.S. 2015 is a joint research study between the National Alliance for Caregiving and AARP providing new insights into high-hour caregivers (21+ hours of care a week), caregivers age 75 and older, multicultural caregivers (including African American, Hispanic, and Asian American populations), and the challenges facing caregivers in the workplace.
A global look at family caregiving across the United States, with companion reports on the following topics: caring for adults over age 50, children with special needs, young adults 18 – 49, and ethnicity of caregivers.
Caregiving research that focuses on specific disease states, including Alzheimer’s and other forms of dementia, cancer, mental illness, multiple sclerosis, and diabetes.
Research which looks at groups of caregivers by population, such as caregivers for Veterans, Hispanic caregivers, gender and caregiving, and children as caregivers.
Impact and Costs of Caregiving
|Caregiving and Technology
This work looks at how technology can lessen caregiver burden and better connect family caregivers to the healthcare teams that care for their loved ones.