Open Data

As part of a national movement to open data to innovators, businesses, and non-profits, the National Alliance for Caregiving is proud to share the following data sets. 

This following research is licensed under a Creative Commons Attribution 4.0 International License. Please attribute your work to this data to the researchers indicated below.

Data Sets

Caregiving in the U.S. 

Caregiving in the US 2015 – Public Use Data File 
Please note that any work done with this data should be jointly attributed to the National Alliance for Caregiving (www.caregiving.org) and AARP (www.aarp.org). This data file includes data on caregivers of people age 75 and older, and an oversample of African American/Black American, Hispanic/Latino, and Asian American Pacific Islander caregivers.
 
Caregiving in the US 2009 – Public Use Data File 
Attribution: National Alliance for Caregiving (www.caregiving.org) and AARP (www.aarp.org)
Data Set (SPSS), Banner Tabs (SPSS), Questionnaires (MS Word) – Download from Dropbox
 
Caregiving in the US 2010 – Dementia Caregiving – Public Use Data File 
Attribution: National Alliance for Caregiving (www.caregiving.org) and AARP (www.aarp.org)
Data Set (SPSS) and Questionnaire (MS Word) – Download from Dropbox 

 


On Pins & Needles – Caregivers of Adults with Mental Illness 
Please note that this work should be jointly attributed to the National Alliance for Caregiving (www.caregiving.org), in partnership with Mental Health America (www.mentalhealthamerica.net) and the National Alliance on Mental Illness (www.nami.org). 
Data Set (SPSS) and Questionnaire (MS Word) – Download from Dropbox

 


What Made You Think Mom Had Alzheimer’s? (2011) 


Caregivers of Veterans – Serving on the Homefront (2010)