NAC is partnering with the National Academy for State Health Policy (NASHP), the Administration for Community Living (ACL), and the John A. Hartford Foundation to develop a series of vignettes to be used to add the caregiver voice into the work of the RAISE Family Caregiver Advisory Council. In 2021, the nearly 30 interviews conducted to write the vignettes will be used to create a series of videos that allow the caregiver voice and their message to disseminate the Council’s recommendations into the general public and among key policymakers. In honor of National Family Caregivers Month in November, NAC, the John A. Hartford Foundation, ACL, and NASHP will be releasing some of these caregivers’ stories to help raise the voices of America’s caregivers. Stay tuned by following the hashtag #RAISEcaregiving on Facebook, Twitter, and LinkedIn.

R.A.I.S.E. Caregivers Spotlight

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Advocacy > R.A.I.S.E. Family Caregivers Act

The RAISE Family Caregivers Act, which became law on January 22, 2018, directs the Secretary of Health and Human Services to develop a national family caregiving strategy. The strategy will identify actions that communities, providers, government, and others are taking and may take to recognize and support family caregivers, and will include:

  • Promoting greater adoption of person- and family-centered care in all healthcare and long-term service and support settings, with the person and the family caregiver at the center of care teams
  • Assessment and service planning (including care transitions and coordination) involving care recipients and family caregivers
  • Information, education, training supports, referral, and care coordination
  • Respite options
  • Financial security and workplace issues

The RAISE Family Caregiver Resource and Dissemination Center

Across the nation, state health programs depend on caregivers who provide critical support to help relatives, friends, and neighbors age in place while contributing about $470 billion in unpaid health care services. To better support family caregivers, Congress passed the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act in 2018, which established the Family Caregiving Advisory Council tasked with creating the country’s first national Family Caregiver Strategy.

To support the council’s work, NASHP has created the RAISE Act Family Caregiver Resource and Dissemination Center with support from The John A. Hartford Foundation to:

Develop family caregiving resources for state and federal policymakers and other stakeholders; Provide support to the council and its subcommittee member as they craft policy recommendations; Convene experts and thought leaders to provide perspectives and expertise to the council; and Support states as they develop policies to address family caregiver issues.

NAC President and CEO, C. Grace Whiting, is honored to serve as expert faculty to the caregiver resource center.


RAISE Family Caregiving Advisory Council

To support the development and execution of the strategy, the RAISE Act also directed the establishment of the Family Caregiving Advisory Council. The council is charged with providing recommendations to the Secretary of Health and Human Services on effective models of both family caregiving and support to family caregivers, as well as improving coordination across federal government programs. The law specified that the council must include up to 15 voting members who reflect the diversity of family caregivers and people who receive support, with at least one from each of the following constituencies:

  • Caregivers
  • Older adults who need long-term services and supports
  • Individuals with disabilities
  • Health care and social service providers
  • Providers of long-term services and supports
  • Employers
  • Paraprofessional workers
  • State and local officials
  • Accreditation bodies
  • Veterans

In addition, the council includes non-voting representatives from federal departments and agencies who play role in these issues.


Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act

Public Law No. 115-119

The term ‘‘family caregiver’’ means an adult family member or other individual who has a significant relationship with, and who provides a broad range of assistance to, an individual with a chronic or other health condition, disability, or functional limitation.



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