Transplant Caregiving Collaborative
About the Transplant Caregiving Collaborative
Family caregivers play a critical role in providing support before, during, and after transplantation. Despite this, they are under-studied, under-resourced, and under-supported. NAC’s Transplant Caregiving Collaborative is working to address these gaps by conducting research on the experiences and needs of transplant caregivers, collecting and uplifting their stories, and developing policy recommendations to improve support for caregivers.
Collaborative’s Core Priorities
Champion Practice Change:
Mobilize stakeholders across the transplant ecosystem to enhance caregiver support at transplant centers.
Advocate Federal Reform
Include caregiver support in federal reform transplant system policies.
Transplant Caregiver Stories
NAC actively collects the stories of caregivers to amplify family caregiver voices to inform policies and practices. Click on each photo to learn more about personal stories of transplant caregivers, including the joys and challenges of caring for someone throughout the transplant journey.
Resources and Advocacy Activities
Disparities and Missed Opportunities in Support Services Across U.S. Transplant Centers
Understanding the OPTN Modernization Initiative & Implications for Caregivers
Gaps and Opportunities: Family Caregiver Programs in the U.S. Transplant Centers
Transplant Caregiving in the US: A Call for System Change
Gaps and Opportunities: Family Caregiver Programs in the U.S. Transplant Centers
Transplant Caregiving in the US: A Call for System Change
Annual Champions in Care Forum
The Champions in Care Forum is an annual event organized by the Collaborative, dedicated to bringing together caregivers, thought leaders, and advocates to address the challenges and solutions in caregiving. This event serves as a platform to highlight insights and foster collaboration across various sectors. By uniting those who support and care for others in the transplant care continuum, the forum plays a crucial role in advancing caregiving policies, resources, and public awareness.
1st Annual Champions in Care Forum: Uplifting Caregivers in Transplant Care in partnership with Global Liver Institute
2nd Annual Champions in Care Forum: Driving Caregiver Support in Healthcare Delivery in partnership with Coalition to Transform Advanced Care (C-TAC)
Funders
Thank you to the funders whose support allows us the opportunity to improve the lives of transplant family caregivers.
Connect With Us
To subscribe to our bimonthly newsletter, or learn more about the Transplant Caregiving Collaborative, please email us at transplantcarecollab@caregiving.org or fill out the form below: