Champions in Care Forum
The National Alliance for Caregiving’s Champions in Care Forum will be an ongoing annual webinar to raise awareness about current transplant system reform efforts and highlight policy opportunities to recognize the role of family caregivers and adequately support them.
Be a champion for change in transplant care.
At the first-ever Champions in Care Forum, we conducted an in-depth exploration of critical reforms shaping the future of transplant care. We delved into the OPTN Modernization Initiative and the Organ Transplantation Affinity Group’s efforts, with a special focus on the impact of these changes on family caregivers. We also engaged in dynamic discussions that elevated the essential role caregivers play and advocated for policies that prioritize their needs. Watch the recording to learn more.
2024 Speakers
Vice President of Patient and Community Engagement
Global Liver Institute
Transplant Social Work Supervisor
Dell Seton Medical Center at UT Austin
OPTN Vice Chair
Patient Affairs Committee
President and Founder
Transplant Families
Programs Director
National Alliance for Caregiving
Deputy Director, Center for Clinical Standards and Quality
Centers for Medicare and Medicaid Services
Associate Administrator
Health Systems Bureau, Health Resources and Services Administration
President & Chief Executive Officer
National Alliance for Caregiving
Member
OPTN Region 4 Patient Affairs Committee
Partner
Sponsors
* This content was financially supported by Takeda but was developed independently from Takeda
Transplant caregiving is a demanding, often overlooked role. Family caregivers provide crucial support throughout the transplant journey, from waitlist to recovery. Despite their essential role, they face significant challenges, including time constraints, stress, lack of support, and unequal burdens for disadvantaged caregivers. NAC’s Transplant Caregiving in the US: A Call for Systems Change report highlighted the experiences and needs transplant caregivers face.
NAC is committed research and advocacy efforts focus on addressing the critical of transplant caregivers’ needs, ensuring their voices and experiences are centered and translated into policy, research, and practice changes. Available below are the stories of the lived experiences of transplant caregivers, which you can look over to learn more about their journeys.
