Chronic Disease Family Caregiving

AARP-835 AARP Caregiving in the US Infographics

Chronic Disease Family Caregiving Through A Public Health Lens

The report was developed with support from The John A. Hartford Foundation and in partnership with the National Association of Chronic Disease Directors (NACDD). This framework is based on recognizing two main root level issues: that family caregiver health and wellness is an issue that must be addressed and that care coordination efforts are of particular concern as the complexity of care is increasing.

This framework began development in 2020 with NACDD in order to develop an action plan for expanding the family caregiver support infrastructure within the public health sector and is aligned with actions already defined and outlined in the public health sector, such as the Centers for Disease Control and Prevention’s (CDC) Healthy Brain Initiative and Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer’s Act, as well as Trust for America’s Health’s (TFAH) Age Friendly Public Health Systems (AFPHS) Initiative.

The framework itself provides policy recommendations, implementation opportunities, and messaging content aimed at enhancing the national family caregiver support infrastructure through a public health lens, and aims to identify the appropriate mechanisms and practices which could be administered to implement family caregiver supports via entities such as public health departments, community-based organizations, faith-based organizations, direct care workers, insurers, health care providers, and employers.

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