Yang has been caring for her son who was diagnosed with chronic heart failure at a young age. After several surgeries as a child, her son received a heart transplant in 2018 at the age of 15. Yang believes that caring for his chronic heart condition prepared her...
Omar has been through a rough experience caring for his wife, who received a heart and kidney transplant. He has supported her through everything and helps her with whatever she needs. This has been especially challenging because Omar worked in Georgia during the...
Nancy began caring for her husband about eight years ago when a routine blood test diagnosed him with early-stage blood cancer. The doctor informed Nancy’s husband that his best hope for longevity was a stem cell transplant, so he went on the waitlist. There was a lot...
Lorraine became the caregiver for her adult niece when she was diagnosed with liver cancer and then hepatic encephalopathy. Her niece’s daughter and ex-husband lived in different states, but Lorraine was only a few hundred miles away, so she traveled to be with her...
Jesus is a care partner for his younger sister, who, after visits to several doctors was diagnosed with kidney disease. She was told that she would need a kidney transplant. Jesus’ mom is older and was already dealing with some health complications of her own. That...
Jeanne has been caring for her daughter since she was very young. As a child, a viral infection attacked her daughter’s heart, causing her to need a heart transplant; in 2020 as a young adult, Jeanne’s daughter needed a kidney transplant as well. Jeanne has been her...
When Ira met his wife, Glenda, she had manageable Type 1 diabetes. Their relationship began as a care partnership, where Ira would attend his wife’s doctor’s appointments and would help her manage her chronic disease. Increasing complications with her diabetes...
When Hailey’s daughter was born, Hailey instantly became a caregiver. Upon her daughter’s birth, doctors had to remove about 98 percent of her intestines, and only gave her a few weeks to live. They did not explore any options on how to help her. Hailey and her...
A few years ago, Georgette’s sister started experiencing medical complications. While Georgette lived in New York City, her sister and her family lived in Atlanta, where her husband worked. It was decided that the medical complications were serious enough that...
Cody is a caregiver for his young daughter, who was born eight weeks early with biliary atresia, a rare liver disease. Doctors told Cody and his family that she would eventually need a liver transplant, and in the meantime performed a surgery that was able to delay...
Brian was the caregiver for his wife, who needed a kidney transplant a few years ago. While they were engaged, Brian’s wife went into septic shock due to kidney failure, and that, combined with her pre-existing Type 1 Diabetes, led to high blood pressure and...
Albert cares for his partner, who has received a kidney transplant and was undergoing dialysis when he and Albert started dating. Albert knew going into the relationship that he would be a part of his partner’s care team one day. Albert’s partner was able to remain...
Maggie has been a caregiver for both her husband and her son, both of whom had blood cancer. While her husband was diagnosed with non-Hodgkin’s lymphoma in 2014, her son was diagnosed with acute myeloid leukemia in 2019 and ended up needing a bone marrow transplant....
Claire’s husband was diagnosed with idiopathic cardiomyopathy several years ago, leading to the eventual need for a heart transplant, which he has now received. Claire did not become his care partner immediately upon diagnosis because he was still very fit and active,...
Laura spent two years caring for her husband, who was diagnosed with stage IV neuroendocrine pancreatic cancer. They proceeded with chemotherapy, radiation, and surgery to close off blood vessels in his liver that were feeding the cancer. Her husband then underwent an...
National Alliance for Caregiving
1730 Rhode Island Ave. NW
Suite #812
Washington, D.C. 20036