Guidebook

Supporting Diverse Family Caregivers: A Guide For Patient Advocacy Groups

The National Alliance for Caregiving conducted structured interviews with professionals from patient advocacy groups and diverse family caregivers caring for someone who had been diagnosed with heart disease, blood cancer, lung cancer or lupus, conditions that are known to disproportionately affect diverse communities. We wanted to better understand how culture and identity affects the way caregivers provide care, access culturally responsive supports and resources, and how caregivers engage with patient advocacy groups.

With the guidance of a panel of disease representative patient advocacy organizations, these findings shaped the content of this guide and supported the need for sections detailing the research findings, articulating what diverse caregivers say about their experiences, and offering tips for both advocating for and empowering diverse caregivers. What Providers Should Know: Factsheets About Diverse Family Caregivers, was contributed by the Diverse Elders Coalition and offers supporting evidence documenting the unique needs of diverse caregivers.