Rare Disease Caregiving

Rare Disease Caregiving Rare Disease Caregiving The National Alliance for Caregiving, in partnership with Global Genes, is proud to present Rare Disease Caregiving in America (February 2018), a national study of 1,406 unpaid caregivers ages 18 and over living in the...
Rona

Rona

Rona lives in rural Oklahoma and is the mother of three children. Her youngest child is a 13-year-old with Down syndrome. Her daughter is non-verbal and has significant intellectual disabilities. She can’t be left unattended. Though Rona feels fortunate that she and...