NAC_TransplantCaregiversReport-FINAL

powerpoint presentation Adrienne Smith

Pamela Nadash is an Associate Professor of Gerontology at University of Massachusetts Boston, in the Manning College of Nursing and Health Sciences and Fellow of the LeadingAge LTSS Center@UMass Boston. Her work centers on health policy and aging: specifically, the...

Omar

Omar has been through a rough experience caring for his wife, who received a heart and kidney transplant. He has supported her through everything and helps her with whatever she needs. This has been especially challenging because Omar worked in Georgia during the...

NAC_TransplantCaregiversReport-FINAL

Gina

Gina cares for four people in total: two of her five children and both of her parents. Gina has a 14-year-old son with undiagnosed schizophrenia and diabetes, an 11-year-old son with autism, a father with heart disease, and a mother recovering from a brain tumor....

Karen

Karen has the mindset that you do what you can to help family, so she began to do the shopping and other small tasks for her mother in 2010. In addition, Karen has a background in finance, so she helped her mother, aunt, and uncle with their finances. By 2016, Mimi...

Claire

Claire’s husband was diagnosed with idiopathic cardiomyopathy several years ago, leading to the eventual need for a heart transplant, which he has now received. Claire did not become his care partner immediately upon diagnosis because he was still very fit and active,...

Katie

Katie is the mother of a 20-year-old son born with physical and intellectual disabilities caused by a rare disease. The factors of her son’s care have been constantly changing, meaning the caregiving process has changed as well. As her son’s primary caregiver and...

Core Advocacy Principles

Core Advocacy Principles Expand Caregiver Access To Supports & Services RAISE Family Caregivers Act State Plans for Caregivers Training & Information Care Planning Tools Invest In Evidence Informed Caregiver Research Service Utilization Cost-Savings Improved...