Gaps and Opportunities: Family Caregiver Programs in U.S. Transplant Centers
This webinar is part of the National Alliance for Caregiving (NAC)’s ongoing advocacy and research efforts to improve support for transplant caregivers, building on recommendations from the report, Transplant Caregiving in the US: A Call for Systems Change. Family...NFCM State-Based Action Toolkit
NFCM State-Based Action Toolkit
Elevating the Caregiver Voice in Medical Debt
With National Family Caregiver Month almost upon us, I’ve been reflecting on the stories I hear of family caregivers struggling with the costs of care, including medical debt. This is an issue that’s personal to me. My family lost my paternal grandmother to cancer...jan
jan
AARP- caregiver fact sheet
AARP- caregiver fact...NAC_2024 OAA Reauth Policy Brief_v2
NAC_2024 OAA Reauth Policy Brief_v2
PHI and National Alliance for Caregiving Unveil Roadmap to Empower Direct Care Workers and Family Caregivers
New York, NY – As the U.S. population ages and the demand for long-term care continues to rise, the vital partnership between direct care workers and family caregivers has never been more important. Today, PHI, the nation’s leading authority on the direct care workforce …
SCOTUS Decision Highlights and Implications
Transplant Caregiving
Transplant Caregiving Collaborative About Priorities Caregiver Stories Resources Annual Forum Funders About the Transplant Caregiving Collaborative Family caregivers play a critical role in providing support before, during, and after transplantation. Despite this,...NAC_AccessingNationalStrategy
NAC_AccessingNationalStrategy
CEO Update January 2024
Dear Members and Colleagues, Happy 2024! We hope that you were able to take a bit of time to re-energize and connect more intentionally with your loved ones. We are excited to jump into another year of championing change for America’s 53 million family caregivers!...
Yang
Yang has been caring for her son who was diagnosed with chronic heart failure at a young age. After several surgeries as a child, her son received a heart transplant in 2018 at the age of 15. Yang believes that caring for his chronic heart condition prepared her...
Lorraine
Lorraine became the caregiver for her adult niece when she was diagnosed with liver cancer and then hepatic encephalopathy. Her niece’s daughter and ex-husband lived in different states, but Lorraine was only a few hundred miles away, so she traveled to be with her...
Jeanne
Jeanne has been caring for her daughter since she was very young. As a child, a viral infection attacked her daughter’s heart, causing her to need a heart transplant; in 2020 as a young adult, Jeanne’s daughter needed a kidney transplant as well. Jeanne has been her...
Brian
Brian was the caregiver for his wife, who needed a kidney transplant a few years ago. While they were engaged, Brian’s wife went into septic shock due to kidney failure, and that, combined with her pre-existing Type 1 Diabetes, led to high blood pressure and...NAC_Spotlight-CaringForTheCarer_PUBLISH
NAC_Spotlight-CaringForTheCarer_PUBLISH
Gina
Gina cares for four people in total: two of her five children and both of her parents. Gina has a 14-year-old son with undiagnosed schizophrenia and diabetes, an 11-year-old son with autism, a father with heart disease, and a mother recovering from a brain tumor....
Veronica
With a background in special education, Veronica had wanted to take care of a child with special needs, and she was quickly matched with Elena, who has cerebral palsy. When Veronica married, she trained her sister Giselle to take her place as Elena’s carer, but still...
Rey
When Rey immigrated from the Philippines in 1989 as a teen, he made his home in Los Angeles, earned his MBA, and worked in biotech at a Fortune 500 company. In 2014, Rey’s father had a stroke, and Rey left LA for to St. Louis to take care of him. Rey now lives with...
Harold
Harold was a primary caregiver for his mother, who was diagnosed with chronic adult leukemia. His mother’s care consisted of an extensive support system including Harold’s boyfriend, sister, father and a series of home health aides. Significantly, Harold had...
Maggie
Maggie has been a caregiver for both her husband and her son, both of whom had blood cancer. While her husband was diagnosed with non-Hodgkin’s lymphoma in 2014, her son was diagnosed with acute myeloid leukemia in 2019 and ended up needing a bone marrow transplant....
Martha
Martha is the care partner to her wife, who was diagnosed in late 2016 with stage 4 metastatic lung adenocarcinoma. At the initial diagnosis, the resources provided to Martha by the medical team as a care partner were minimal. Martha, who is a licensed clinical social...
Myra
Myra is a care partner to her husband, who was diagnosed with lung cancer about a year ago. She and her husband are a team, so Myra never questioned that she would be the one helping with his care. She’s also never considered the term “caregiver” to apply to her,...
Paurvi
Paurvi was a caregiver for both her mother and her father. While her father had Alzheimer’s, her mom had many conditions, including lung disease that turned into lung cancer, which originated from cervical cancer. Paurvi’s parents immigrated from India, and being...
Terrence
Terrence was a co-caregiver with his sister for his mother, who had heart disease. When she ended up needing triple-bypass surgery, Terrence moved back to Omaha to help take care of her while she was out of work and needed some help. He was a younger caregiver at this...
Nayma
While Nayma’s siblings live with their parents, Nayma is the backbone of her siblings’ care team. Their parents came to the United States from Mexico as adults and have faced difficulties overcoming the language barrier. Nayma’s past, present, and future are shaped by...Whitney
Caring for both her two-year-old and her husband, while maintaining full-time work as an attorney, was the hardest thing Whitney ever had to do, and she constantly battled with whether she was providing enough care and attention to each of them. Whitney cared for her...
Gabriel
A recent high school graduate, Gabe grew up in a household with his mom, 3 siblings (he is the youngest), and his grandpa who had a serious mental illness. Gabe spent much of his childhood helping around the house and caring for his grandpa. Being a caregiver at such...
Letty
Letty’s mother, who had dementia, has since passed on, but Letty still cares for her father. Letty herself is suffering from health issues on top of the support she provides to her parents, and finds it difficult to find the time and the ability to travel to and from...