


2020 Census
We are excited to announce that we’ve partnered with the U.S. Census Bureau to support the 2020 Census! As a partner, NAC will be working to ensure that our network of caregivers and advocates are accurately represented. Every 10 years, the Census Bureau undertakes a...
Rare Disease Families Front and Center in Upcoming Caregiving Study
The National Alliance for Caregiving and Global Genes have Launched a New Study of Caregivers for Persons with Rare Disease WASHINGTON, DC (PRWEB) August 31, 2017 — As many as 30 million Americans are affected by a rare disease or condition, and many of these...
Dementia Dramatically Increases Family Expenses
The average lifetime cost of care after a diagnosis of dementia in the U.S. is about $322,000, and families pay about 70% of that, new research suggests. The cost of care is $185,000 higher for someone with dementia than for someone without it, the study authors wrote...
How HIPAA regulations can encourage caregiver, family engagement
How HIPAA regulations can encourage caregiver, family engagement Patient EngagementHIT | August 28, 2017 “Being a patient does not have to be a solo experience. Many patients benefit from caregiver and family engagement – and many providers encourage...