IPAY2028_Caregiver_Advocacy_Toolkit_March 2026

Susan

Susan and her sisters are devoted to their aging mother, whose health has been steadily declining. Diagnosed with both Chronic Obstructive Pulmonary Disease (COPD) and macular degeneration, their mom now requires daily support just to manage basic tasks and maintain...

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New State-by-State Data Expose the Crushing Financial Strain of Family Caregiving — and Call for Immediate Federal and State Action

New Findings from AARP And NAC Urge Lawmakers to Strengthen Supports for Nation’s 63 Million Caregivers. Washington, D.C. — New state-level joint analysis of Caregiving in the US 2025 by AARP and the National Alliance for Caregiving (NAC), released today, reveals how...

Understanding the OPTN Modernization Initiative_8.27.2025

NA_Transplant Disparities Report_082625

New Brief Reveals Inequities in Support Services for Family Caregivers at U.S. Transplant Centers

Washington, D.C. — The National Alliance for Caregiving (NAC) today released a new brief, “The Family Caregiver Gap: Disparities and Missed Opportunities in Support Services Across U.S. Transplant Centers,” revealing significant inequities in how family...

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Caregiving Call Press Release_7.22.25_FINAL

New Report Reveals Crisis Point for America’s 63 million Family Caregivers

1 in 4 Americans provide ongoing, complex care; report finds they endure poor health, financial strain and isolation. Up 20 million since 2015. WASHINGTON, DC – Today, AARP and the National Alliance for Caregiving released a sweeping new report that paints a stark...

NAC Urges Senate to Reject House Budget Reconciliation Package That Undermines Medicaid and the Care Infrastructure

The National Alliance for Caregiving (NAC) strongly opposes the budget reconciliation bill passed by the House today. This bill includes devasting cuts to Medicaid and other foundational safety net programs on which millions of American families depend. Family...

NAC_CancerCollab_Financial Toxicity

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Jennifer Bevan, Ph.D.

Dr. Jennifer L. Bevan (B.A., M.A., University of Delaware, Ph.D.; University of Georgia) is a professor in the School of Communication at Chapman University in Orange, CA. Dr. Bevan’s research interests focus upon the communicative negotiation of difficult relational...

10.25.2023 Design Workshop Proceedings

Jason Resendez

Jason Resendez is the President and CEO of the National Alliance for Caregiving, where he leads research, policy, and innovation initiatives to build health, wealth, and equity for America’s 53 million family caregivers. Jason is a nationally recognized expert on...

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This Week in Caregiving April 19 2023

This Week in Caregiving April 12 2023

This Week in Caregiving April 5 2023

This Week in Caregiving March 22 2023

This Week in Caregiving March 29 2023

Connie Siskowski, RN, PhD

President and Founder American Association of Caregiving Youth (AACY). Educated at Johns Hopkins, New York University and Lynn University, her doctoral research uncovered the high prevalence of caregiving by students in Palm Beach County, FL. In 1998 she established...

Pedro

Pedro is originally from Brazil, and moved to the United States when he was 21. While he lived in Brazil, he was a caregiver from the age of 12 for his grandmother, who had pulmonary fibrosis. Pedro was one of several family members who cared for his grandmother, but...

Rey

When Rey immigrated from the Philippines in 1989 as a teen, he made his home in Los Angeles, earned his MBA, and worked in biotech at a Fortune 500 company. In 2014, Rey’s father had a stroke, and Rey left LA for to St. Louis to take care of him. Rey now lives with...

Sheryl

Sheryl’s husband has dementia and Parkinsonian symptoms. Sheryl does everything in the household from finances to house repairs and cooking, cleaning, and maintaining their way of life. Sheryl has found it hard to take over her husband’s duties as well as her own. Two...