Cancer Caregiving Collab_CFPB_Comment Letter_FINAL_08.12.2024 1

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The National Alliance for Caregiving Appoints New Chief External Affairs Officer to Strengthen Leadership Team

WASHINGTON, July 26, 2024 – The National Alliance for Caregiving (NAC) announced the appointment of Kimberly Cantor as its new Chief External Affairs Officer. In this newly created role, Cantor will oversee the organization’s policy, advocacy, and communication...

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Alexandra Zaleta, PhD

Alexandra Zaleta, PhD, is Vice President of Research and Insights at CancerCare, a national non-profit organization that supports and advocates for people affected by cancer. Dr. Zaleta is a caregiver advocate, research scientist, and clinical psychologist with...

Assessing The National Strategy to Support Family Caregivers as a Model to Inform Efforts to Advance a National Plan on Aging

The report examines the development and implementation of the RAISE Family Caregivers Act, culminating in the 2022 National Strategy to Support Family Caregivers. This strategy was created to enhance support for family caregivers across the United States, offering...

The National Alliance for Caregiving Applauds Nebraska’s passage of the Caregiver Tax Credit Act.

The National Alliance for Caregiving applauds Nebraska’s passage of the Caregiver Tax Credit Act. This $2,000 annual credit will offer much-needed financial relief to Nebraska’s family caregivers. According to NAC and AARP’s Caregiving in the U.S....

Chief External Affairs Officer Job Description_2024

Pamela Nadash, PhD, BPhil

Pamela Nadash is an Associate Professor of Gerontology at University of Massachusetts Boston, in the Manning College of Nursing and Health Sciences and Fellow of the LeadingAge LTSS Center@UMass Boston. Her work centers on health policy and aging: specifically, the...

Yang

Yang has been caring for her son who was diagnosed with chronic heart failure at a young age. After several surgeries as a child, her son received a heart transplant in 2018 at the age of 15. Yang believes that caring for his chronic heart condition prepared her...

Omar

Omar has been through a rough experience caring for his wife, who received a heart and kidney transplant. He has supported her through everything and helps her with whatever she needs. This has been especially challenging because Omar worked in Georgia during the...

Nancy

Nancy began caring for her husband about eight years ago when a routine blood test diagnosed him with early-stage blood cancer. The doctor informed Nancy’s husband that his best hope for longevity was a stem cell transplant, so he went on the waitlist. There was a lot...

Jesus

Jesus is a care partner for his younger sister, who, after visits to several doctors was diagnosed with kidney disease. She was told that she would need a kidney transplant. Jesus’ mom is older and was already dealing with some health complications of her own. That...

Jeanne

Jeanne has been caring for her daughter since she was very young. As a child, a viral infection attacked her daughter’s heart, causing her to need a heart transplant; in 2020 as a young adult, Jeanne’s daughter needed a kidney transplant as well. Jeanne has been her...

Ira

When Ira met his wife, Glenda, she had manageable Type 1 diabetes. Their relationship began as a care partnership, where Ira would attend his wife’s doctor’s appointments and would help her manage her chronic disease. Increasing complications with her diabetes...

Kylie Meyer, PhD

Kylie Meyer, PhD, is a Gerontologist and Assistant Professor at the Frances Payne Bolton School of Nursing at Case Western Reserve University. Her program of research focuses on psychoeducational interventions to support family caregivers in multiple domains, such as...

Erin Bouldin, PhD, MPH

Erin Bouldin, PhD, MPH is trained as an epidemiologist and health services researcher. She is an Investigator in the IDEAS Center at the VA Health Care System in Salt Lake City and an Assistant Professor in the Department of Internal Medicine. Her research interests...

Andrea Gilmore Bykovskyi, PhD, RN

Dr. Gilmore-Bykovskyi leads an active research program focused on promoting effective, meaningful, and equitable care for people living with Alzheimer’s disease and related dementias. Her research aims to identify and effectively intervene on structural and health...

National Alliance for Caregiving Secures $2 Million Cooperative Agreement to Strengthen the Nation’s Caregiving Research Infrastructure

For Immediate Release Contact: Toni Gingerelli, Associate Director of Policy & Advocacy toni@caregiving.org, 202-697-8204 WASHINGTON DC, September 22, 2023 — The National Alliance for Caregiving has been awarded a $2 million cooperative agreement from the...

Heidi Donovan, PhD, RN

Dr. Donovan is a Professor of Nursing & Medicine Co-Director, National Center on Family Support University of Pittsburgh Director, Gynecologic Oncology Family CARE Center Magee Women’s-Hospital of UPMC. Dr. Donovan’s research and practice is in the development of...

Rey

When Rey immigrated from the Philippines in 1989 as a teen, he made his home in Los Angeles, earned his MBA, and worked in biotech at a Fortune 500 company. In 2014, Rey’s father had a stroke, and Rey left LA for to St. Louis to take care of him. Rey now lives with...

Harold

Harold was a primary caregiver for his mother, who was diagnosed with chronic adult leukemia. His mother’s care consisted of an extensive support system including Harold’s boyfriend, sister, father and a series of home health aides. Significantly, Harold had...

Martha

Martha is the care partner to her wife, who was diagnosed in late 2016 with stage 4 metastatic lung adenocarcinoma. At the initial diagnosis, the resources provided to Martha by the medical team as a care partner were minimal. Martha, who is a licensed clinical social...

Terrence

Terrence was a co-caregiver with his sister for his mother, who had heart disease. When she ended up needing triple-bypass surgery, Terrence moved back to Omaha to help take care of her while she was out of work and needed some help. He was a younger caregiver at this...

Whitney

Caring for both her two-year-old and her husband, while maintaining full-time work as an attorney, was the hardest thing Whitney ever had to do, and she constantly battled with whether she was providing enough care and attention to each of them. Whitney cared for her...

Jennifer H.

In 2011, Jennifer H. first noticed that her mother was having trouble with her short-term memory. Jennifer didn’t believe it was serious at first, but, over time, her mother’s condition escalated to include paranoia, getting lost or confused easily, suffering from...

Katie

Katie is the mother of a 20-year-old son born with physical and intellectual disabilities caused by a rare disease. The factors of her son’s care have been constantly changing, meaning the caregiving process has changed as well. As her son’s primary caregiver and...

Laura

Laura spent two years caring for her husband, who was diagnosed with stage IV neuroendocrine pancreatic cancer. They proceeded with chemotherapy, radiation, and surgery to close off blood vessels in his liver that were feeding the cancer. Her husband then underwent an...

Leslie

Now in their 80s, Les and his wife have been together since they were 16 years old. In 2014, his wife began having cognitive impairments and, through several tests, it was determined that she had Alzheimer’s disease. Her diagnosis was caught early. Over time, as her...