Dr. Karen Moss is a registered nurse, nurse scientist, and an Assistant Professor in the Colleges of Nursing and Medicine at The Ohio State University. Dr. Moss’ research is focused on improving pain and healthcare decision making (advance care planning) outcomes by...
At the National Alliance for Caregiving (NAC), we leverage data to champion our nation’s 63+ million family caregivers who provide ongoing, complex care. By capturing the diverse experiences of caregivers nationwide, we empower researchers with robust data, a...
Shannon has two children with complex medical needs – a son and a daughter. Her daughter has Down Syndrome, a sensory processing disorder, hyperthyroidism, obstructive sleep apnea and a heart condition, while her son has been diagnosed with autism, anxiety, and ADHD....
Kory cares for his 6-year-old son, Asher, who lives with spinal muscular atrophy type 1. He has a trach, a G-tube, and sleeps with a ventilator at night. He is able to move around on his own with mobility devices but needs help to and from those devices. When Kory and...
Medicaid Under Threat: NAC’s Unified Response to HHS Restructuring and Program Cuts Fresh from the American Society on Aging’s #OnAging2025 conference, I’m filled with both inspiration and concern. The three days spent among fierce advocates...
Dr. Frank Puga is an assistant professor in the Department of Acute, Chronic, and Continuing Care at the University of Alabama at Birmingham (UAB) School of Nursing. He received his Ph.D. in psychology with a concentration in behavioral neuroscience from the...
Rare Disease Day is February 28, 2022. Rare Disease affects 300 million people around the world, or about 3.5-5.9% of the global population. Since 2008, Rare Disease Day has been held on the last day of February to internationally coordinate on working towards equity...
