Sandwich Caregiving Sandwich Caregiving in the US The National Alliance for Caregiving (NAC) in partnership with Caring Across Generations is proud to release Burning the Candle at Both Ends: Sandwich Generation Caregiving in the US. This new report illuminates the...
Rare Disease Caregiving Rare Disease Caregiving The National Alliance for Caregiving, in partnership with Global Genes, is proud to present Rare Disease Caregiving in America (February 2018), a national study of 1,406 unpaid caregivers ages 18 and over living in the...
Jennifer is a caregiver for her daughter, who has two rare chromosomal deletions, causing her to be medically complex. Among her diagnoses are intellectual disabilities, seizures, IBD and ARFID. For the past three years, Jennifer has been provided with a stipend...
Jennifer’s caregiving journey began in 2011 with the birth of her second child. Her son, who had complications in utero, needed surgery in order to live, and now has a condition known as short bowel syndrome. Jennifer also has two daughters, both born after her son....
Heather’s son Matthew is 13 years old and living with severe autism and epilepsy, which is currently in remission. Heather has been providing care for Matthew since he was a baby. In addition to the routine care a mother provides, making sure Matthew is fed and...
Carolina’s care journey began in 2016 when both her parents were hospitalized – her father with rhabdomyolysis and her mother with pneumonia. Now, both her parents are 90 years old and live with kidney disease. Her mom is legally blind and has Alzheimer’s, and her dad...
Honoring My Mom and Celebrating Hispanic Heritage Month My mom was a ‘sandwich caregiver.’ While raising three kids and working full-time, she also cared for my grandmother, who battled multiple chronic conditions—a common situation in Latino households...
The Power of Lived Experience in Advancing Caregiving Policy: Lessons from the Caregiver Nation Summit At this year’s Caregiver Nation Summit, one theme rose above all others: gratitude. Gratitude for the caregivers who show up day after day. Gratitude for the...
Being Christina’s care partner has been one of the most rewarding, challenging, and life-changing experiences of my life. It has tested me emotionally, stretched me intellectually, and reshaped who I am. Christina has C3G, a rare kidney disease. Before caregiving, I...
