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Terry

Terry

Terry has always cared for her daughter, who has severe intellectual disabilities. When her daughter was 19, she developed schizophrenia, which affected her disabilities and caused her to decline cognitively. Terry needs to help her do everyday activities like...
Teresa

Teresa

Teresa is the mother of two sons, one of whom is a 26-year-old with profound autism. Teresa acts as his guardian and his representative for self-directed services. She is also his caregiver. Teresa’s son qualifies for personal assistance (PA) services under a Medicaid...
Starr

Starr

Starr knows that caring for someone is a full-time job. She cares for her son, who has severe autism, developmental delays, and a rare genetic disorder that affects his behavior and cognitive functioning. Starr is a single parent and is the only one available to care...
Insights from Jason Resendez | NFCM 2025

Insights from Jason Resendez | NFCM 2025

The Power of Lived Experience in Advancing Caregiving Policy: Lessons from the Caregiver Nation Summit  At this year’s Caregiver Nation Summit, one theme rose above all others: gratitude. Gratitude for the caregivers who show up day after day. Gratitude for the...
America’s Caregiving Crisis Is Getting Worse

America’s Caregiving Crisis Is Getting Worse

Every morning at 6 a.m., Debbi from Eagan, Minnesota, begins her 18-hour shift caring for her son Josh, who was born with a brain hemorrhage that left him with cerebral palsy. For more than 30 years, she’s managed his ventilator, feeding tube and medications....