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State Plans Advocacy > State Plans for Caregivers Several states have taken the lead to further define how caregivers need to be supported on the community level. You can find those reports here. Alabama Caregiver Task Force...

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Kory

Kory cares for his 6-year-old son, Asher, who lives with spinal muscular atrophy type 1. He has a trach, a G-tube, and sleeps with a ventilator at night. He is able to move around on his own with mobility devices but needs help to and from those devices. When Kory and...

Advocacy Fellow_Job Description 2022

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Rare Disease Families Front and Center in Upcoming Caregiving Study

The National Alliance for Caregiving and Global Genes have Launched a New Study of Caregivers for Persons with Rare Disease WASHINGTON, DC (PRWEB) August 31, 2017 — As many as 30 million Americans are affected by a rare disease or condition, and many of these...

This Week in Caregiving – October 17th

Here are some highlights from this week’s news on caregiving and aging: Informal Caregiving for Elderly Stroke Patients Costs $26.8B Cardiovascular Business | October 14, 2014 “A study published online Oct. 10 in Neurology added the price of informal...

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Dianne | Green Bay, Wisconsin

I am his primary caregiver.

Dianne | Green Bay, WI

This letter is reprinted with permission from the Greater Wisconsin Agency on Aging Resources, Inc. (GWAAR). If you had asked me two years ago if I ever thought I would need a grant, I would have laughed. My husband Chuck and I retired early with great medical...

63 Million Americans Are Quietly Holding Our Society Together—And They’re Struggling

By: Melina Pineyro, MPH While you’re reading this, millions of Americans are juggling work calls while managing their parent’s medications or helping a spouse with dementia. They’re family caregivers—and groundbreaking new data shows they urgently...

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