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Research

Research Caregiving in the US Caregiving in the US (CGUS) is a comprehensive study of the American family caregiver, and it is widely regarded as one of the most authoritative data resources on family caregivers. The report explores the challenges and opportunities...
Kory

Kory

Kory cares for his 6-year-old son, Asher, who lives with spinal muscular atrophy type 1. He has a trach, a G-tube, and sleeps with a ventilator at night. He is able to move around on his own with mobility devices but needs help to and from those devices. When Kory and...

Dr. K R Gangadharan

I have known Gail since 2003 when she graciously accepted our invitation to address an international conference at Hyderabad India and created an ever lasting impression about her vision. Since then, I have had many interactions and she visited India many times, the last one being the 12th IFA Global conference in 2014 at Hyderabad, when I was the Global President of IFA. I remember an active role she played during the White House Conference on Ageing 2005 when I was invited to speak as a part of Global Round Table. In 2015, she made sure that I presented a paper in the 6th International Carers Conference in Gothenburg, Sweden. I hope to remain connected with her. I wish I were present at the memorable event this month to facilitate Gail’s significant contributions to the global caregiving advocacy efforts. My best wishes to her and the new CEO Grace at NAC.

Chiara Acquati, PhD, LGSW, FAOSW

Chiara Acquati, PhD, LGSW, FAOSW

Chiara Acquati, PhD, LGSW, FAOSW is the inaugural Beatrice “Bean” E. Robinson Endowed Chair in Clinical Sexual Health within the Eli Coleman Institute for Sexual and Gender Health (ISGH) at the University of Minnesota Medical School, where she also serves as Associate...
NAC Care Notes

NAC Care Notes

Beyond Statistics: How Medicaid Supports Millions of Rare Disease Families Each February, Rare Disease Week provides an opportunity to spotlight the challenges that patients with rare diseases and their family caregivers face. This year’s Rare Disease Week comes...
Elevating the Caregiver Voice in Medical Debt

Elevating the Caregiver Voice in Medical Debt

With National Family Caregiver Month almost upon us, I’ve been reflecting on the stories I hear of family caregivers struggling with the costs of care, including medical debt. This is an issue that’s personal to me. My family lost my paternal grandmother to cancer...