Rare Disease Caregiving Rare Disease Caregiving The National Alliance for Caregiving, in partnership with Global Genes, is proud to present Rare Disease Caregiving in America (February 2018), a national study of 1,406 unpaid caregivers ages 18 and over living in the...
By Lauren Tokarewich My true love has always been stories. More specifically, it’s in the preservation of stories; documenting experiences so they can help us understand where we’ve been and shape where we go next. I’ve always believed history is one of the most...
Lisa is an Associate Professor in the Department of Psychiatry at Geisel School of Medicine. She has a MS in Brain and Cognitive Sciences from MIT, and subsequently attended medical school at the University of Vermont. For many years she has been an attending...
Sanary is a Cambodian American who moved with her family to the United States at a young age as a refugee. As the daughter in a refugee family, she feels she has filled the role of caregiver all her life, starting by acting as the English translator and interpreter...
Gina cares for four people in total: two of her five children and both of her parents. Gina has a 14-year-old son with undiagnosed schizophrenia and diabetes, an 11-year-old son with autism, a father with heart disease, and a mother recovering from a brain tumor....
Zuzette and TeriLynne are from the Gila River Indian Community and have cared for their aging parents, as well as their own children, two of whom have chronic conditions. Zuzette is the primary caregiver for her and TeriLynne’s mother, and supported their mother in...
Zuzette and TeriLynne are from the Gila River Indian Community and have cared for their aging parents, as well as their own children, two of whom have chronic conditions. Zuzette is the primary caregiver for her and TeriLynne’s mother, and supported their mother in...
Portraits of Caregiving in the US The National Alliance for Caregiving is focused on translating the lived experience of caregivers into policy and innovation efforts to build health, wealth, and equity for America’s 53 million family caregivers. This hub showcases...
1997 Report Caregiving in the US 1997 Numerous studies have been conducted on various aspects of informal (unpaid) or family caregiving of older adults. Nationwide information on the magnitude, intensity, and types of informal caregiving provided, however, together...
Share Care Act Advocacy > Share Care Act Millions of Americans are caring for a parent, spouse or other loved one, helping them to live independently at home. For many, family caregiving is more than helping with household chores or providing transportation. It...
Donate Donate Donate by Mail You may be a family caregiver – have been one – or are about to become one. If so, then you know about the daily challenges of finding resources to provide the best care possible for those you love. Since 1996, the Alliance has been...
