Working in partnership with patient-advocacy and consumer-facing partners, NAC has been honored to contribute our expertise to a series of guidebooks intended to improve the caregiving experience.
Crohn’s Disease Circle of Care Guide
This Circle of Care guidebook is a new resource designed to help caregivers navigate their journey caring for a child or adolescent with Crohn’s disease. The centralized guidebook offers effective information and tools that have helped other caregivers in similar situations. A 2019 study from the National Alliance for Caregiving—which reported survey feedback from 728 individuals who reported providing unpaid care for someone with IBD—found that IBD has a profound impact on the lives of caregivers and highlighted their unmet needs. Findings from that study inspired the development of this guidebook.
If you or someone you know cares for a child or adolescent living with Crohn’s disease, make sure to check out the guidebook.
Mental Health Circle of Care Guide
The National Alliance for Caregiving is pleased to present Circle of Care: A Guidebook for Mental Health Caregivers. It was developed with generous support from the Alkermes Inspiration Grant Program, to whom we are most grateful.
The Circle of Care guidebook emerged from the national study on mental health caregiving, On Pins and Needles: Caregivers of Adults with Mental Illness. This study was conducted with the assistance of the National Alliance on Mental Illness and Mental Health America and released in February 2016. It was the first national survey of mental health caregivers conducted in the United States: it identified numerous challenges faced by these caregivers. You can learn more about this study in the first fact sheet in this guidebook: 01: About Mental Health Caregiving.
Like our other resources for family caregivers, Circle of Care is designed to guide unpaid friends, family, and neighbors who care for someone with a mental health condition. The fact sheets are intended to assist these caregivers with finding help for the specific challenges identified in the On Pins and Needles study.
Memory Loss Conversation Guide
Working with the Alzheimer’s Foundation of America, NAC has created a conversation guide for family caregivers on talking about memory changes and cognitive health.
If you’ve been noticing changes in an adult in your life, it may be time to talk about brain health. Perhaps the person you care for is having a hard time remembering things. They may act differently or struggle with everyday activities. Talking about brain health does not have to be scary. Use the guide below, or participate in our upcoming webinars, to learn about how to start a conversation with your loved one about these changes.
Use these resources to learn about brain health.
- Alzheimer’s Foundation of America
- National Memory Screening Program
- Cleveland Clinic: Healthy Brains Initiative
- Mayo Clinic: Memory Loss – 7 Tips to Improve Your Memory
- Mayo Clinic: Memory Loss – When to Seek Help
- National Academies: Brain Health Action Guide for Individuals and Families
- National Institute on Aging – Brain Health Resource
- National Institute on Aging – A Good Night’s Sleep
Falls Prevention Conversation Guide
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