Medicaid Self-Directed Care Services_April 2026

Jennifer C.

When Jennifer’s mother was diagnosed with pancreatic cancer, Jennifer immediately recognized that she would take on the caregiving role. Caring for her mother felt like a natural extension of the care her parents had given her throughout her life. Because of the...

HOLD Act Social Media Toolkit_04.14.2026

NAC_2026_PolicyAgenda_FINAL

Strengthening Complex Care Through Family Caregiver Integration

Life-saving treatments—such as organ transplant and cancer therapy—represent major clinical milestones, but they also mark the beginning of a demanding and long-term caregiving journey. Across many areas of care, family caregivers quickly become essential partners,...

Template-Letter-to-Gov-on-Work-Requirements_Updated Feb-2026

Terry

Terry has always cared for her daughter, who has severe intellectual disabilities. When her daughter was 19, she developed schizophrenia, which affected her disabilities and caused her to decline cognitively. Terry needs to help her do everyday activities like...

Teresa

Teresa is the mother of two sons, one of whom is a 26-year-old with profound autism. Teresa acts as his guardian and his representative for self-directed services. She is also his caregiver. Teresa’s son qualifies for personal assistance (PA) services under a Medicaid...

Kory

Kory cares for his 6-year-old son, Asher, who lives with spinal muscular atrophy type 1. He has a trach, a G-tube, and sleeps with a ventilator at night. He is able to move around on his own with mobility devices but needs help to and from those devices. When Kory and...

Julie

Julie is the mother of twin boys with Down syndrome. Medicaid home and community-based services have been a lifeline for her family, covering essential medical costs through the Katie Beckett waiver and offering critical supports like respite care and Community...

Alicia

Alicia is the legal guardian for her two granddaughters, both of whom are diagnosed with depression, anxiety and PTSD. Medicaid provides stability and coverage for vital healthcare services and medications that allow Alicia to focus on caregiving to her...

Insights from Jason Resendez | NFCM 2025

Federal Cuts Threaten America’s Family Caregivers: Why We Must Act Now Anita in Atlanta had to make an impossible choice. After building a career she loved, she took early retirement to care for her mother who has both dementia and cancer. Without access to...

Template Letter to Gov on Work Requirements_Dec 2025

Advancing Support for Family Caregivers in the CY 2026 Medicare Physician Fee Schedule

The CY 2026 Medicare Physician Fee Schedule Final Rule marks progress in recognizing family caregivers as essential partners in care. Thanks to sustained advocacy from the National Alliance for Caregiving (NAC), the Caregiver Nation Coalition, and the Cancer...

Undermining the Infrastructure

Jason Resendez leads the National Alliance for Caregiving, which studies and supports Americans who care for someone with a chronic illness, medical complexity, disability, or other health care needs. He spoke to Aging in America News about the dire consequences of...

New report indicates number of family caregivers is growing

WASHINGTON, D.C. — A new report finds the number of family caregivers has grown in the U.S. by 20 million over the past decade. The report from AARP and the National Alliance for Caregiving finds 63 million Americans now serve as a family caregiver. “We have folks...

Advocating Policy Change to Empower Family Caregivers

Join Us in Celebrating National Family Caregivers Month

November is National Family Caregivers Month, a time to honor and celebrate the millions of people who provide care to loved ones every day. This year, NAC invites you to help us recognize the vital contributions of family caregivers through our 2025 theme: Plug in to...

Derrick | Inkster, Michigan

Providing care for his uncle with multiple chronic conditions

Anita | Atlanta, Georgia

Providing care for her mother with dementia and cancer

Anita

When Anita’s mother’s health started to decline, Anita retired early to provide her with personalized care. Anita’s mom is blind, has dementia, and is battling three types of cancer in different stages. Melanoma on the bottom of her foot has caused mobility issues and...

House Committee Releases FY26 Funding Bill, NAC Urges Support for Senate’s Stronger Family Caregiver Investments

The House Committee on Appropriations released its Fiscal Year 2026 Labor, Health and Human Services, Education and Related Agencies funding bill today. While the National Alliance for Caregiving (NAC) appreciates modest increases in targeted programs, we are...

New Brief Reveals Inequities in Support Services for Family Caregivers at U.S. Transplant Centers

Washington, D.C. — The National Alliance for Caregiving (NAC) today released a new brief, “The Family Caregiver Gap: Disparities and Missed Opportunities in Support Services Across U.S. Transplant Centers,” revealing significant inequities in how family...

New Brief Highlights How Medicare Can Strengthen Support for Family Caregivers

As more families step into caregiving roles for loved ones with serious and complex conditions like cancer, a new report from the National Alliance for Caregiving’s Cancer Caregiving Collaborative explores how Medicare billing codes can help provide stronger support...

Part3_NAC_CancerCollab_CTS-Medicare

NAC Urges Senate to Reject House Budget Reconciliation Package That Undermines Medicaid and the Care Infrastructure

The National Alliance for Caregiving (NAC) strongly opposes the budget reconciliation bill passed by the House today. This bill includes devasting cuts to Medicaid and other foundational safety net programs on which millions of American families depend. Family...