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Rare Disease Caregiving

Rare Disease Caregiving Rare Disease Caregiving The National Alliance for Caregiving, in partnership with Global Genes, is proud to present Rare Disease Caregiving in America (February 2018), a national study of 1,406 unpaid caregivers ages 18 and over living in the...

Finances & Work

Finances & Work Family caregiving can have a big impact on a family’s finances and on the family caregiver’s ability to work and retire. Although financial resources are sometimes limited, there are a variety of resources available to help caregivers...
History

History

Our History Honoring Our Legacy. Building a More Caring Future NAC founder, Gail Gibson Hunt, had a vision for the future of family caregivers. One in which our nation’s family caregivers were visible, valued, and supported.   While the nation had begun to examine the...
Ty Lewis

Ty Lewis

“If [Medicaid] cuts happen, that means, honestly, we would be homeless, and we wouldn’t have the resources we need, and my mom wouldn’t have care. It starts a cycle where I wouldn’t be able to work, and I wouldn’t have what I needed to be able to survive in this...
Susan

Susan

Susan and her sisters are devoted to their aging mother, whose health has been steadily declining. Diagnosed with both Chronic Obstructive Pulmonary Disease (COPD) and macular degeneration, their mom now requires daily support just to manage basic tasks and maintain...
Shannon

Shannon

Shannon has two children with complex medical needs – a son and a daughter. Her daughter has Down Syndrome, a sensory processing disorder, hyperthyroidism, obstructive sleep apnea and a heart condition, while her son has been diagnosed with autism, anxiety, and ADHD....
Julie

Julie

Julie is the mother of twin boys with Down syndrome. Medicaid home and community-based services have been a lifeline for her family, covering essential medical costs through the Katie Beckett waiver and offering critical supports like respite care and Community...
What Donald Trump’s Medicaid cuts mean for caregivers

What Donald Trump’s Medicaid cuts mean for caregivers

Looking out for a family member who’s aging or disabled can take a huge toll on caregivers. And the burden just got heavier thanks to President Donald Trump’s cuts to Medicaid — the single largest source of funding for long-term care of disabled and elderly people. It...
Kelly Shaffer, PhD

Kelly Shaffer, PhD

Dr. Shaffer is an Associate Professor in the Center for Behavioral Health and Technology at the University of Virginia School of Medicine, as well as the co-lead of the Cancer Prevention and Population Health research program in the University of Virginia...