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Changing the Story of Care: Thirty Years of Making Caregivers Visible
For most of American history, family caregiving didn’t have a name, a number, or a seat at the policy table. It was simply what families—mostly women—did behind closed doors. It was the daughter driving her father to chemotherapy, the spouse managing complex...
Senate Passes Older Americans Act Reauthorization on Its 61st Anniversary — Now the House Must Finish the Job
The National Alliance for Caregiving (NAC) applauds the passage of S.2120, the Older Americans Act Reauthorization Act. NAC extends its gratitude to bill cosponsors Sens. Bill Cassidy (R-LA), Bernie Sanders (I-VT), Rick Scott (R-FL), Kirsten Gillibrand (D-NY), Susan...
Programs_Strengthening-Complex-Care_Slides_FINAL
NAC Responds to the Interim Final Rule from the Centers for Medicare & Medicaid Services (CMS)
Washington, D.C. — In response to the interim final rule from the Centers for Medicare & Medicaid Services (CMS) on Medicaid work requirements, the National Alliance for Caregiving issued the following statement: At a pivotal moment for Medicaid, the interim...
CMS-0042-NC_NAC and CTAC Comment_6-16-25
Finally, the Family Caregiver Was at the Table. Now We Must Keep Her There.
This month’s reflection is a piece written by Jason Resendez, President & CEO, National Alliance for Caregiving and Rebecca Dittrich, Esq., MPH, Managing Director of Daughterhood, a nonprofit organization dedicated to helping family caregivers navigate the...
Candidate FAQ – May 2026
Feb 13 – Newsletter
Mental Health Impacts of Family Caregiving_May 2026
Medicaid Self-Directed Care Services_April 2026
NAC Value of Medicaid HCBS Letter Final_4.22.26
ADVOCACY TOOLKIT_Ensure Family Caregivers are Exempt from Medicaid Work Requirements_Updated 02.25.2026
Template-Letter-to-Gov-on-Work-Requirements_Updated Feb-2026
NAC_CancerCare_ListeningSession-02.13.26
Ty Lewis
“If [Medicaid] cuts happen, that means, honestly, we would be homeless, and we wouldn’t have the resources we need, and my mom wouldn’t have care. It starts a cycle where I wouldn’t be able to work, and I wouldn’t have what I needed to be able to survive in this...
Susan
Susan and her sisters are devoted to their aging mother, whose health has been steadily declining. Diagnosed with both Chronic Obstructive Pulmonary Disease (COPD) and macular degeneration, their mom now requires daily support just to manage basic tasks and maintain...
Shannon
Shannon has two children with complex medical needs – a son and a daughter. Her daughter has Down Syndrome, a sensory processing disorder, hyperthyroidism, obstructive sleep apnea and a heart condition, while her son has been diagnosed with autism, anxiety, and ADHD....
Julie
Julie is the mother of twin boys with Down syndrome. Medicaid home and community-based services have been a lifeline for her family, covering essential medical costs through the Katie Beckett waiver and offering critical supports like respite care and Community...
CY2026_MPFS_Cancer_Comment_Letter_with_Signatures
What Donald Trump’s Medicaid cuts mean for caregivers
Looking out for a family member who’s aging or disabled can take a huge toll on caregivers. And the burden just got heavier thanks to President Donald Trump’s cuts to Medicaid — the single largest source of funding for long-term care of disabled and elderly people. It...
What You Missed in Caregiving This Month
Advocating Policy Change to Empower Family Caregivers
Kelly Shaffer, PhD
Dr. Shaffer is an Associate Professor in the Center for Behavioral Health and Technology at the University of Virginia School of Medicine, as well as the co-lead of the Cancer Prevention and Population Health research program in the University of Virginia...
Join Us in Celebrating National Family Caregivers Month
November is National Family Caregivers Month, a time to honor and celebrate the millions of people who provide care to loved ones every day. This year, NAC invites you to help us recognize the vital contributions of family caregivers through our 2025 theme: Plug in to...
National Alliance for Caregiving Statement on the Federal Government Shutdown
The federal government shutdown strikes hardest at the margins, and for family caregivers already operating at capacity, the effects are immediate and severe. More than 63 million Americans provide ongoing, complex care to older adults, those living with serious...
Dianne | Green Bay, WI
This letter is reprinted with permission from the Greater Wisconsin Agency on Aging Resources, Inc. (GWAAR). If you had asked me two years ago if I ever thought I would need a grant, I would have laughed. My husband Chuck and I retired early with great medical...
CY2026 MPFS Cancer Collab Letter
Understanding the OPTN Modernization Initiative_8.27.2025

