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Condition-Specific Research

Condition Specific The Alliance has conducted condition-specific research on caregivers who support patients with Alzheimer’s disease and other forms of dementia, cancer, mental illness, multiple sclerosis, and diabetes. Alzheimer’s and Related Dementias...

Condition Specific Populations

Condition Specific Populations Parkinson’s Disease Caregiving in the US Download Alzheimer’s and Related Dementias Download Download Download Download Download Download Download Autoimmune (Inflammatory Bowel Disease) NAC, in partnership with the Crohn’s...

Caregiver Populations

Special Populations Baby Boomers Download Download Diverse Populations Download Download Download Download Download Download Download Long-Distance Caregivers Download Rural Caregivers Download Sandwich Caregivers Download Download Young Caregivers Download Contact /...

History

National Alliance for Caregiving: 30 Years of Advancing Caregiving  Honoring Our Past, Building What Comes Next For 30 years, the National Alliance for Caregiving (NAC) has worked to make caregiving visible, valued, and supported.  In 1996, Gail Gibson...

Core Advocacy Principles

Core Advocacy Principles Expand Caregiver Access To Supports & Services RAISE Family Caregivers Act State Plans for Caregivers Training & Information Care Planning Tools Invest In Evidence Informed Caregiver Research Service Utilization Cost-Savings Improved...

Rare Disease Caregiving

Rare Disease Caregiving Rare Disease Caregiving The National Alliance for Caregiving, in partnership with Global Genes, is proud to present Rare Disease Caregiving in America (February 2018), a national study of 1,406 unpaid caregivers ages 18 and over living in the...

Caregiving Costs & Reports

Cost & Impact Reports Financial Impact Download Download Download Download Download Working and Caring & Impact on Caregiver Health Download Download Download MetLife Study of Working Caregivers and Employer Health Care Costs (2010) Download Download Download...

Falls Prevention

Falls Preventation Caring for the Caregiver (featuring Queen Latifah’s mom, Rita) We’re honored to partner with the National Council on Aging on a series of resources for family caregivers of older adults. Many caregivers may not realize that 1 in 4 adults...

Policy Initiatives

Policy Initiatives National Alliance For Caregiving Policy Initiatives We build partnerships in research, advocacy, and innovation to make life better for family caregivers. Public Health Family caregiving is an important public health issue not only for those they...

Transplant Caregiving

Transplant Caregiving Collaborative About Priorities Caregiver Stories Resources Annual Forum Funders About the Transplant Caregiving Collaborative Family caregivers play a critical role in providing support before, during, and after transplantation. Despite this,...

Designing a Public-Private Fund to Support Innovation and Research

Innovation The nation has begun to recognize the essential role that unpaid friends and family members play in supporting individuals with ongoing health and assistance needs. Yet these informal support systems are not sufficient to support the many Americans with...

Caregiving in the US 2015

2015 Report Caregiving in the US 2015 The purpose of this study is to present a portrait of unpaid family caregivers today. To that end, the National Alliance for Caregiving (NAC) and the AARP Public Policy Institute are proud to present Caregiving in the US 2015,...

Caregiving in the US 2009

2009 Report Caregiving in the US 2009 The purpose of this study is to present a portrait of family caregivers today, and to compare it to a portrait of caregivers in the past. A national profile of caregivers first emerged from the 1997 Caregiving in the US study. A...

Technology

Technology Catalzying Technology to Support Family Caregiving A new report from the National Alliance for Caregiving identifies key steps to better support family caregiving through the use of mobile, online, and in-home technologies. The report, Catalyzing Technology...

Caregiver Health

Caregiver Health Caring for the Caregiver (featuring Queen Latifah’s mom, Rita) Many caregivers often neglect their own health so that they can care for a loved one. Our research has shown that caregivers often report that caregiving has worsened their health...

General Caregiving

General Caregiving The National Alliance for Caregiving partners with other caregiving associations and groups to provide additional resources to help family caregivers address and cope with the challenges of caring for a loved one. National Family Caregiver Support...

Impact of Caregiving

Impact of Caregiving The impact of caring for a family member is wide – affecting a caregiver’s career, finances, and health. The following research reports identify the challenges facing caregivers and potential solutions to address some of these...

Sandwich Caregiving in the U.S.

Sandwich Caregiving Sandwich Caregiving in the US The National Alliance for Caregiving (NAC) in partnership with Caring Across Generations is proud to release Burning the Candle at Both Ends: Sandwich Generation Caregiving in the US. This new report illuminates the...

Guidebook Supporting Diverse Caregivers

Guidebook Supporting Diverse Family Caregivers: A Guide For Patient Advocacy Groups The National Alliance for Caregiving conducted structured interviews with professionals from patient advocacy groups and diverse family caregivers caring for someone who had been...

Caregiving in the US 2004

2014 Report Caregiving in the US 2014 People who care for adult family members or friends fulfill an important role not only for the people they assist, but for society as a whole. While this care is unpaid, its value has been estimated at 257 billion dollars...

Spotlight Series

Spotlight Series Caring for the Carers: A Spotlight Brief for Supporting the Mental Health of Family Caregivers This installment in the Social Innovations Spotlight Series explores the mental health impacts of family caregiving and explores policy opportunities to...
Chronic Disease Family Caregiving Through a Public Health Lens

Chronic Disease Family Caregiving Through a Public Health Lens

Chronic Disease Family Caregiving Chronic Disease Family Caregiving Through A Public Health Lens The report was developed with support from The John A. Hartford Foundation and in partnership with the National Association of Chronic Disease Directors (NACDD). This...

Caregiving in the US 1997

1997 Report Caregiving in the US 1997 Numerous studies have been conducted on various aspects of informal (unpaid) or family caregiving of older adults. Nationwide information on the magnitude, intensity, and types of informal caregiving provided, however, together...

WCC 2022 Sessions

WCC 2022 Sessions The World Carers Conversation 2022 World Carers Conversation returned May 19, 2022 as a global, virtual event with the support of EMD Serono and Embracing Carers. Innovators, researchers, policymakers and carer advocates from around the globe learned...
Unified Caregiving Strategy

Unified Caregiving Strategy

Unified Caregiving Strategy Developing a Unified Strategy to Support Family Caregivers The National Alliance for Caregiving (NAC) presents From Momentum to Movement: Developing a Unified Strategy to Support Family Caregivers Across the Nation. This report is aligned...